最高の Columbus Cares ポッドキャスト (2024)

1
Ending Parkinson's Disease 46:07

7d ago46:07

46:07

In this riveting episode of CPR for Life, host Dr. Sagar Doshi sits down with Dr. Ray Dorsey, a leading neurologist and co-author of the groundbreaking book "Ending Parkinson's Disease." Together, they delve into the startling revelation that Parkinson's is largely a preventable disease driven by environmental factors. Discover why Dr. Dorsey is pa…

1
133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA 8:58

8d ago8:58

8:58

Rare Care Podcast による

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133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS 12:20

12d ago12:20

12:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis.Rare Care Podcast による

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132: An Interview With Michelle C. Werner, CEO of Alltrna 14:44

19d ago14:44

14:44

Rare Care Podcast による

1
Fighting Parkinson's with Fitness: How and Why, Part 2 42:18

21d ago42:18

42:18

In this episode, we explore the practical "hows" of movement and the basic foundation to build upon. Of course, we'll talk more about why its important as well as Dr. Corcos' current research If you're one of the many people struggling to make exercise part of your life, CPR Coaching has helped people like you. Learn more by making an appointment. …

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131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD 13:02

27d ago13:02

13:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder.Rare Care Podcast による

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130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio 10:06

1M ago10:06

10:06

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Instute of Nationwide Children’s Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy.…

1
Fighting Parkinson's with Fitness: How and Why, Part 1 53:27

1M ago53:27

53:27

Join us for an enlightening episode with Dr. Daniel Corcos, a world-renowned researcher in Parkinson's disease. In this episode, Dr. Corcos delves into how maintaining fitness can aid those with Parkinson's, improve their quality of life, and potentially slow disease progression. Discover the science behind exercise benefits and practical advice fo…

1
129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy 8:31

1M ago8:31

8:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy.Rare Care Podcast による

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128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 15:00

2M ago15:00

15:00

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.Rare Care Podcast による

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Beyond the Tremor: The Hidden Psychiatric Impact of Parkinson's Disease, Part 2 27:42

2M ago27:42

27:42

Dive deep into Part 2 of 'Beyond the Tremor: The Hidden Psychiatric Impact of Parkinson's Disease' as Dr. Morrow and Dr. Sagar unravel the intricate connections between psychiatric symptoms and Parkinson's. From the vicious cycles of depression and anxiety exacerbated by social isolation to the revolutionary treatments on the horizon, this episode …

1
127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida 14:02

2M ago14:02

14:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.Rare Care Podcast による

1
Beyond the Tremor: The Hidden Psychiatric Impact of Parkinson's Disease, Part 1 37:29

2M ago37:29

37:29

In this episode of CPR for Life, we sit down with Dr. Christopher Morrow, an expert in the psychiatric effects of Parkinson's Disease (PD). They delve into the often overlooked yet highly impactful psychiatric symptoms that accompany PD, including anxiety, depression, hallucinations, delusions, impulsive behaviors, and cognitive impairments. Dr. Mo…

1
126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) 14:23

2M ago14:23

14:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).Rare Care Podcast による

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125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis 17:59

2M ago17:59

17:59

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.Rare Care Podcast による

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125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation 16:36

2M ago16:36

16:36

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.Rare Care Podcast による

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124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis 14:47

3M ago14:47

14:47

Rare Care Podcast による

1
The Unseen Influencers: Gut Bacteria's Role in Shaping Parkinson's, Part 2 35:47

3M ago35:47

35:47

Hear directly from leading scientists Dr. Scheperjans and Dr. Auvinen about the intricate dance between gut bacteria and the brain, the potential pitfalls of probiotics, and the hidden dangers of certain antibiotics. Explore how lifestyle choices like diet and exercise forge a path toward potentially mitigating Parkinson's symptoms and discover why…

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123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation 11:15

3M ago11:15

11:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.Rare Care Podcast による

1
The Unseen Influencers: Gut Bacteria's Role in Shaping Parkinson's, Part 1 36:17

3M ago36:17

36:17

Is it possible that the key to combating Parkinson's disease lies hidden within our own gut bacteria? This episode of 'The Unseen Influencers: Gut Bacteria's Role in Shaping Parkinson's, Part 1,' delves into this intriguing question. With insights from renowned researchers Dr. Scheperjans and Dr. Auvinen, we embark on an extraordinary journey throu…

1
122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome 13:46

3M ago13:46

13:46

Rare Care Podcast による

1
121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD 4:13

3M ago4:13

4:13

Rare Care Podcast による

1
Unmasking Parkinson's, Part 2 34:25

4M ago34:25

34:25

Dr. Duarte Machado is a neurologist specializing in Parkinson's Disease and has a personal connection with this condition. This episode discusses the importance of understanding Parkinson's disease, identifying early symptoms such as changes in smell and bowel habits, risk factors including environmental exposures and genetic factors, impact of str…

1
120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 17:11

4M ago17:11

17:11

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.Rare Care Podcast による

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119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy 15:58

4M ago15:58

15:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.Rare Care Podcast による

1
Unmasking Parkinson's, Part 1 31:17

4M ago31:17

31:17

Dr. Duarte Machado is a neurologist specializing in Parkinson's Disease and has a personal connection with this condition. He is a leader in helping care for those with Parkinson's. In this episode, he takes away some of the mystery around this disease. Learn if what you're seeing, or experiencing, might be Parkison's and what that means. Find out …

1
118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association 7:58

4M ago7:58

7:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.Rare Care Podcast による

1
Intro to Season 2: Parkinson's Disease 1:24

4M ago1:24

1:24

Coming up this season: Parkinson's Disease. By 2040, about 13 million people are expected to be diagnosed with Parkinson's. Odds are that you'll know someone with this illness, and it might be you. What is Parkison's exactly and what can you do about it? In the meantime, if you're having trouble breaking into good habits, then you may need a health…

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117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy 12:02

4M ago12:02

12:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, at the MDA's 2024 Clinical & Scientific Conference in Orlando, Florida. Walker, 39, has spinal muscular atrophy (SMA) type 2.Rare Care Podcast による

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116: An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas 11:34

4M ago11:34

11:34

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Seema Lalani, MD, of Baylor College of Medicine in Houston, Texas. Dr. Lalani directs Project GIVE (Genetic Inclusion by Virtual Evaluation), a pediatric screening program in the impoverished 4-county Rio Grande Valley region of southern Texas.…

1
115: An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy 9:52

5M ago9:52

9:52

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Matt Trudeau, head of ITF Therapeutics—a division of Italy's Italfarmaco—on treating Duchenne muscular dystrophy with givinostat, a histone deacetylase inhibitor.Rare Care Podcast による

1
114: An Interview With Thomas Holm Pedersen, PhD, Cofounder and CEO of Denmark's NMD Pharma 14:34

5M ago14:34

14:34

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Thomas Holm Pedersen, PhD, cofounder and chief executive of NMD Pharma, a Danish company that's pursuing the use of chloride channel 1 (ClC-1) as a novel target for restoring muscle function in both myasthenia gravis and spinal muscular atrophy.…

1
113: An Interview With Courtney Silverthorn, MD, Associate VP of Science Partnerships at the Foundation for the National Institutes of Health 12:19

5M ago12:19

12:19

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Courtney Silverthorn, MD, of the Foundation for the National Institutes of Health (NIH) about the NIH's Bespoke Gene Therapy Consortium.Rare Care Podcast による

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112: An Interview With Cristol Barrett O'Loughlin, CEO of Raregivers 12:52

6M ago12:52

12:52

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cristol Barrett O'Loughlin, founder and CEO of Raregivers—a nonprofit organization that offers mental health and wellness services to those caring for people with rare diseases.Rare Care Podcast による

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111: An Interview With Omar Kamlin, MD, Senior Medical Director at Orphalan 15:08

6M ago15:08

15:08

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omar Kamlin, MD, senior medical director at French drugmaker Orphalan, whose therapy, Cuvrior, treats Wilson disease.Rare Care Podcast による

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110: An Interview With Melinda Bachini, Chief Patient Officer at the Cholangiocarcinoma Foundation 18:20

6M ago18:20

18:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Melinda Bachini, chief patient officer at the Cholangiocarcinoma Foundation, about a new study detailing the burden on caregivers of people with cholangiocarcinoma.Rare Care Podcast による

1
109: An Interview With Kyle Bryant, Director of the Ambassador Program at the Friedreich's Ataxia Research Alliance 9:03

7M ago9:03

9:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kyle Bryant, director of the Ambassador Program at the Friedreich's Ataxia Research Alliance (FARA), and founder and director of rideATAXIA.Rare Care Podcast による

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109: An Interview With Paul Bolno, MD, CEO of Wave Life Sciences 12:32

7M ago12:32

12:32

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Paul Bolno, MD, the CEO of Wave Life Sciences, whose investigational therapy WVE-003 is a potential treatment for Huntington disease.Rare Care Podcast による

1
An Interview With Chris Peetz, CEO of Mirum Pharmaceuticals 13:55

8M ago13:55

13:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Peetz, CEO of Mirum Pharmaceuticals, about the growing number of treatments for pruritis (severe itch), one of the worst symptoms associated with Alagille syndrome.Rare Care Podcast による

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107: An Interview With Thierry VandenDriessche, PhD, of the European Society of Gene & Cell Therapy 10:09

8M ago10:09

10:09

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Belgian molecular biologist Thierry VandenDriessche, PhD, president of the local organizing committee of the European Society of Gene & Cell Therapy.Rare Care Podcast による

1
106: An Interview With Brian O'Mahony, CEO of the Irish Haemophilia Society 8:38

8M ago8:38

8:38

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Brian O'Mahony, president of the Irish Haemophilia Society and one of the few hemophilia B patients in Europe to receive gene therapy.Rare Care Podcast による

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105: An Interview With Selene Capodarca, Global Study Coordinator for HD-Enroll 11:00

8M ago11:00

11:00

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Selene Capodarca. This Italian expert in pharmaceutical chemistry and technology, is the global study director for Enroll-HD, with 30,000 patients the world's largest observational study in Huntington disease.Rare Care Podcast による

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104: An Interview With Professor Claire Booth, Cofounder of the AGORA Initiative 12:20

8M ago12:20

12:20

Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Professor Claire Booth of University College London and cofounder of the AGORA Initiative, which aims to tackle the growing economic hurdles that prevent lifesaving gene therapies from reaching children who need them the most.Rare Care Podcast による

1
103: An Interview With Dr. Paul Bolno, CEO of Wave Life Sciences 10:28

9M ago10:28

10:28

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Paul Bolno, MD, the CEO of Wave Life Sciences, whose investigational therapy WVE-006 is a potential treatment for the liver disease associated with alpha-1 antitrypsin disorder (AATD).Rare Care Podcast による

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102: An Interview With Margareth Ozelo, Director of the International Hemophilia Training Centre (IHTC) at Brazil's University of Campinas (UNICAMP) 6:55

9M ago6:55

6:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Brazilian bleeding disorders expert Margareth Ozelo, who has been researching gene therapies for hemophilia for the past 25 years.Rare Care Podcast による

1
101: An Interview With Rob Haselberg, an Huntington Patient Advocate Who Has Tested Positive for the Disease 6:55

9M ago6:55

6:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rob Haselberg, a Dutch patient advocate for Huntington disease who is heatlhy now, but will develop HD later in life after having tested positive for the incurable, progressive illness.Rare Care Podcast による

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100: An Interview With Herwig Lange, MD, President of the German Huntington Association 16:57

9M ago16:57

16:57

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Herwig Lange, MD, a neurologist who has been researching Huntington disease since 1969. Dr. Lange, a proponent of non-drug therapy to improve the lives of HD patients, is also president of the German Huntington Association.Rare Care Podcast による

1
Can stress cause a heart attack? 24:11

10M ago24:11

24:11

Can stress really contribute to a heart attack? If so, is the answer to eliminate stress? Join me as I take the mic to delve into a topic important to my own survival: stress and heart disease. I have a special interest in stress; I work in a field where most people burnout and have a family history of heart disease. There's a course at CPR all abo…

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99: An Interview With Cathleen Lutz, PhD, Vice President of the Jackson Laboratory's Rare Disease Transactional Center 14:20

10M ago14:20

14:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cathleen Lutz, PhD, vice president of the Jackson Laboratory's Rare Disease Transactional Center in Bar Harbor, Maine. Dr. Lutz is leading efforts to implement the latest genomic editing techniques to address the actual genetic defect in Friedreich ataxia, with the goal of tran…

1
Your DNA is NOT your future 46:22

11M ago46:22

46:22

What if I told you that you could rewrite your genetics? That just because your parents died early, doesn't mean that you will. This is the science of epigenetics. Today we talk with leading expert Dr. Shimul Chowdhury about our genes NOT being our fate. Find out how you can make meaningful, tangible, durable improvements to your sleep and health a…

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