Sharing patient stories and discussions while having a laugh and keeping it real. New episodes back early 2025! A weekly podcast where performer, creator, and MS-er Jess Brien interviews people from around the world that are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries and potentially disastrous diagnoses. @thatssochronic | @jessssbrien | #ThatsSoChronic Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocati ...
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Um, hiiii! Firstly, I want to say a huge sorry for leaving you all in the lurch here on the That’s So Chronic podcast feed! Like I explain in this update episode, I really did not anticipate this big of a break between new episodes, hence why I didn’t let you know ahead of time! In this episode I try to explain where the heck I’ve been and how I’ve…
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That's So: Designer $hit documentary (an interview with director Saffron Cassaday)
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It’s the final Tuesday of the month which means it’s time for a That’s So episode! A chance to chat about a piece of content that’s in our That’s So Chronic world. Today, we’re chatting about the feature documentary Designer $hit directed by Saffron Cassaday. In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for …
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Miranda Allen & Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
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Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) In this episode, Miranda looks back with hindsight and explains where it’s possible her symptoms began, the years of not really knowing what was going on, …
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Markus Birdman & 2 Strokes and Homonymous Hemianopia
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Welcome back to That’s So Chronic! Today - in the middle of the Edinburgh Festival Fringe - I was able to sit down with comedian Markus Birdman, to chat about his experience of having two strokes, as well as living with a diagnosis of homonymous hemianopia. In this episode Markus explains how it it felt for him going through stroke number one and t…
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That's So: The Surgeons' Hall Museums (and the Blood & Guts Walking Tour)
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Welcome back to That’s So Chronic! It’s the final Tuesday of the month which means it’s time for a That’s So episode, where we chat about something that’s in our That’s So Chronic world. Today, we’re chatting about The Surgeons’ Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh’s Medical History Walking Tour that I was able to ch…
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Welcome to That’s So Chronic!. Today I am chatting to psychiatrist, comedian, and author Dr Jo Prendergast about her diagnosis of breast cancer, as well as her latest book When Life Sucks. In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis…
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Welcome back to That's So Chronic! Today I am joined by Dr Saimun Singla and we are discussing her diagnosis of rheumatoid arthritis as well as her work as a paediatric rheumatologist and integrative medicine physician. In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthrit…
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That's So: The D*List (with editor Olivia Shivas)
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Welcome to That's So Chronic. It’s the final Tuesday of the month, which means it’s time for another That’s So episode. Today I am chatting to Olivia Shivas, the editor of The D*List - the home of disability culture in Aotearoa. The D*List is an online culture magazine that creates space for disabled people to tell their own stories through feature…
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Nick Allen & Functional Neurological Disorder (FND) and Fibromyalgia
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Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case… In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage h…
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It’s my favourite day of the week again! Welcome back to That’s So Chronic! Today’s episode is with Audrey Zannese and we are discussing her diagnosis of multiple sclerosis (MS). In this episode Audrey opens up about how in denial she was when she first heard that her symptoms might be MS, and then the journey it took for her to make the decision t…
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Welcome to That’s So Chronic! Today I am chatting to Sophie Ricketts, and she talks us through a hymenectomy surgery that she had while she was at drama school. In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she wasn’t ready” for sex, a gut feeling that wasn’t initia…
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Welcome back to That’s So Chronic! Today’s episode is with Dr Kara Wada, MD, and we are discussing her diagnosis of Sjogren’s syndrome and her work as an allergist, immunologist, and lifestyle medicine physician. In this episode Dr Kara shares her diagnosis story, as well as the symptoms that - with hindsight - are also pieces of the Sjogren's puzz…
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Spotlight On: Dr Hayley Leake (pain researcher & winner of Survivor Australia)
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Welcome back to That’s So Chronic. It's the final Tuesday of the month, so we take a break from regular interviews. For today’s Spotlight On episode, I’m chatting to pain researcher and sole Survivor, Dr Hayley Leake. In this episode Hayley chats about the pain research work that she is working on, her PhD, what excites her about the future of pain…
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Welcome back to That’s So Chronic! Today’s episode is with Elizabeth, and we are chatting about her diagnosis of multiple sclerosis (MS). In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her management plan including diet and Natalizumab/Tysabri infusio…
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Ruby Quinn & ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), Endometriosis, & ADHD (Attention Deficit Hyperactivity Disorder)
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Yay! It’s Tuesday! Which means a brand new episode of That’s So Chronic! Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). In this episode, Ruby starts by sharing her story of her ME/CFS diagn…
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Allie Sharples & Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Cleft Lip & Palate
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Ahhhh!!!! WE’RE BACK! BRAND NEW EPISODES! Sorry for shouting but I’m SO EXCITED! Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. In this episode, Allie takes us all the way back to the beginni…
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If you're new to That's So Chronic... START HERE (Trailer)
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Welcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastrous diagnoses... all while having a laugh along the way…
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That's So: Why Does It Still Hurt? by Dr Paul Biegler (an interview with Paul!)
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It’s the final Tuesday of the month which means a That’s So episode! Today I am chatting about Dr Paul Biegler’s latest book Why Does It Still Hurt? Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other patients’ stories, and interviews with some of the top p…
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Annie Vander & Complex Regional Pain Syndrome (CRPS)
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Welcome back to That’s So Chronic! Today, after a couple of technical difficulties, I’m joined by singer songwriter Annie Vander, and we’re talking all about her diagnosis of complex regional pain syndrome (CRPS) In this episode Annie shares the accident that subsequently changed the course of her career, the diagnosis process, her definition of CR…
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Natasha Godetz & Juvenile Idiopathic Arthritis and a double hip replacement at 32
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Welcome to That’s So Chronic! Today’s episode is with Natasha Godetz, and we are chatting about her diagnosis of juvenile idiopathic arthritis and the journey that led her to a double hip replacement. In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 years old, the effects university had on her health, the ups…
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Shana Pereira & a heart and kidney transplant
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YAY! We’re BACK! Thank you for being so patient while I took a break for the summer holidays here in NZ! Today’s episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that towards the end of the episode! In this episode Shana talk…
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Hello! Here is a sneaky lil bonus episode to finish the year! A 2022 That’s So Chronic wrapped episode, if you will! I thought why not lean into the end of year vibes, and share 22 moments that have made up my (and the pod’s!) 2022. These are mostly highlights and achievements that feel fun to celebrate, with some challenging aspects thrown in too.…
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That's So: The Good Nurse & Capturing The Killer Nurse (Charles Cullen)
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It’s the final (regular) That’s So Chronic episode of the year! How is that even possible!? Seeing as it’s the final Tuesday of the month it’s a That’s So episode. Today we are chatting about the two latest films to be released on Netflix all about serial killer Charles Cullen. It is of course The Good Nurse and Capturing The Killer Nurse …and I ha…
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Olivia & ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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Happy Tuesday! Welcome to That’s So Chronic. Today’s episode is with Olivia, who shares her journey navigating symptoms and trying to find a diagnosis. Olivia has been diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) but refers to that as a blanket diagnosis that doesn’t really explain the full picture. In this episode Oli…
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Monica Foster & Cushing's Disease (Hypercortisolism)
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Welcome back to That’s So Chronic! Today’s episode is with Monica Foster, and we are talking about her diagnosis of cushing’s disease (hypercortisolism). In this episode Monica shares her diagnosis journey, the ups and downs that came with countless tests from various different medical professionals, the decision to go through with brain surgery fo…
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Natalie Meyers & Rheumatoid Arthritis, Lupus & Pericarditis (with her mom Dr. Laurie!)
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Yay! Happy Tuesday! Today’s episode of That’s So Chronic is with Natalie Meyers and her mom Dr. Laurie, and we’re chatting about Natalie’s diagnosis of rheumatoid arthritis, lupus and pericarditis. ** We had a couple of technical difficulties getting this video call to work, so thanks in advance for being understanding about the sound quality! ** I…
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Chelsea Haughton & Polycystic Ovarian Syndrome, Premenstrual Dysphoric Disorder & Hypermobile Ehlers Danlos Syndrome
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Today’s episode of That’s So Chronic is with Chelsea Haughton and we are talking about her diagnosis of polycystic ovarian syndrome (PCOS), premenstrual dysphoric disorder (PMDD), and hypermobile ehlers danlos syndrome (hEDS). In this episode, Chelsea shares her experiences of seeking a diagnosis which includes flying to a different city for an app…
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Welcome to That's So Chronic! Today we are shining a spotlight on Hear Your Song, a non-profit organisation that is empowering children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting. If you know a bit about me, you’ll know that this is my cup of tea, so I was very excited to l…
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Finn Iles/Violet Tendencies & Hypermobile Ehlers Danlos Syndrome (hEDS)
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Happy Tuesday! Today I am chatting to Finn Iles/Violet Tendencies all about her diagnosis of hypermobile ehlers danlos syndrome (hEDS), as well as a variety of comorbidities that come along with this. In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has h…
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Hi! Today’s episode is a little bit different. If you’re not following That’s So Chronic over on instagram you might have missed that recently I was a guest on Ben Hampton’s podcast A Gluten Free Podcast. You might remember Ben from his interview episode here on That’s So Chronic where he shared his story of being diagnosed with coeliac disease. I …
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That's So: The Certainty Myth by Dr Toni Lindsay (an interview with Toni!)
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How is it the end of September already?! I’m excited to share this months That’s So episode, because today we’re chatting about The Certainty Myth by Dr Toni Lindsay. ** a content warning: while we share a lot of laughs, we do touch on the subject of death, so please take care while listening ** Dr Toni Lindsay is a clinical and health psychologist…
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Maria Williams & ADHD (Attention Deficit Hyperactivity Disorder)
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Today’s episode is with comedian Maria Williams, and I must admit, I did have a moment where I cried with laughter while editing this episode! Maria is also a teacher, and lives with a diagnosis of ADHD, or attention deficit hyperactivity disorder. In this episode, Maria shares the journey of her ADHD diagnosis, from a diagnosis in Hawai’i that she…
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It’s Tuesday! Which means another episode of That’s So Chronic! Today is the first in person interview for a little while (thanks to you know what) and I’m chatting to Caitlyn McMillan about her diagnosis of achalasia. In this episode, Caitlyn shares her diagnosis story, the symptoms she experiences, the decision to go through with surgery to her o…
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That's So: The Chronic Pain Couple by Karra Eloff (an interview with Karra!)
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How is it the end of August already?! Today we are taking a break from regular interview episodes to share another That's So episode. That's So is a monthly series where we dive deeper into a piece of content - be that a book, film, tv series, interview, literally anything! - that's in our That's So Chronic world. Today I am talking to Karra Eloff …
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Welcome to That’s So Chronic! Today’s interview is with Sean Prenter, and we’re talk about his experience living life after sustaining a traumatic brain injury. In this episode, Sean talks us through the moment when he fell off a balcony, the recovery process, as well as how recovery looks when you’re a student, how he managed to complete a goal by…
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Rosie Wilson & Multiple Sclerosis (MS) and Coeliac Disease
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Yay! It’s Tuesday! Which means another interview here at That’s So Chronic. Today we are heading to the UK, and hearing from Rosie Wilson. Rosie is living with a diagnosis of coeliac disease and multiple sclerosis (MS) which is what we are chatting about today. In this episode, Rosie takes us through her coeliac diagnosis (as well the important que…
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Welcome back to That’s So Chronic! Today I was able to sit down with Amber Tresca from the AboutIBD podcast to talk about her diagnosis of ulcerative colitis. In this episode Amber talks us through her diagnosis of UC, the effects not having insurance had on her level of care, the decision to go through with J-pouch surgery, why she does the work t…
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Ben Hampton & Coeliac Disease (from A Gluten Free podcast)
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Happy Tuesday! Welcome back to That’s So Chronic! Today I was able to sit down with Ben Hampton from A Gluten Free Podcast to talk about his diagnosis of coeliac disease. In this episode Ben runs us through his journey to a diagnosis, what coeliac disease even is, the somewhat silver lining of being diagnosed in the middle of a global pandemic, wha…
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Happy Tuesday friends! For today’s Spotlight On episode, I’m chatting to Richard Little from Exsurgo - A company that combines neuroscience, engineering and data analysis to help treat a range of neurological conditions without the use of pharmaceuticals. In this episode we’re talking about what inspired Richard to begin working in this space, his …
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Cheyenne Welham & Hypermobile Ehlers Danlos Syndrome
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We made it! It’s Tuesday! Another That’s So Chronic episode! Today we are hearing from Cheyenne Welham, and we are talking about her diagnosis of hypermobile ehlers danlos syndrome (hEDS) and living life with an ostomy bag. In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to g…
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Megan & Vulvodynia, Endometriosis & Adenoyosis
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Happy Tuesday! Welcome to That’s So Chronic! Today I was able to catch up with Megan, to talk about her diagnosis of vulvodynia, endometriosis and adenomyosis. In this episode Megan talks us through her diagnosis story, what it was like being a part of the PIPI programme at Burwood Hospital, the importance of finding a good GP, her experience navig…
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YAY! WE’RE BACK! Today’s episode is with Logan Donnelly (@_kiwidad) and we are chatting about his diagnosis of secondary hypogonadism, and what that means for his fertility. In this episode Logan talks about his diagnosis, the decisions he made in regards to treatment, how wildly different specialists’ opinions can be, why he poured so much time an…
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Happy Tuesday friends! Yep, another PSA… Interviews are going on a little break while I get caught up again! Thanks for being so understanding. I hope you don't forget about me and That's So Chronic! But, this reminds me… Here’s the application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Don’t forget to sign up to the free monthly…
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That's So: The Invisible Kingdom by Meghan O'Rourke (an interview with Meghan!)
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Happy Tuesday! Welcome back to That’s So, a monthly series here at That’s So Chronic where we get to chat a little bit deeper on a piece of content (book, film, interview, etc!) that’s in our That’s So Chronic world. Today… The Invisible Kingdom by Meghan O’Rourke. The Invisible Kingdom - Reimagining Chronic Illness, blends New York Times best sell…
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Happy Tuesday! As always it’s such a treat to have you here. Today I am sitting down with Sarah Cahill to talk about all things chronic migraine. In this episode Sarah explains what chronic migraine is (spoiler alert… it’s not *just* a headache!), what inspired her to start sharing her story on her blog www.migrainedownunder.com, how she manages mi…
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Christina DeSerio & Fibromyalgia and Chronic Migraine
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Welcome back to That’s So Chronic! Today I am chatting to the CEO of AEPIOS - a free and secure online platform that helps connect people with a shared diagnosis to one another. But what people might not know is that Christina is living with fibromyalgia and chronic migraine herself, and that’s what we’re chatting about today. In this episode Chris…
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Well hello! Welcome back to That’s So Chronic. Today you are in for a treat as we get to know Dr Kevin J. Payne, and he talks us through his diagnosis of multiple sclerosis, or more commonly known as, MS. In this episode Dr Payne talks about the journey of finally getting a diagnosis (and a name!) for his symptoms, how he manages these symptoms, wh…
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Emma Maguire & Polycystic Ovarian Syndrome (PCOS), Irritable Bowel Syndrome (IBS), and Premenstrual Dysphoric Disorder (PMDD)
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Hello favourite people! Welcome to That’s So Chronic! Today we’re chatting about irritable bowel syndrome (IBS), polycystic ovarian syndrome (PCOS) and premenstrual dysphoric disorder (PMDD) with Emma Maguire. In this episode Emma shares the road to getting these diagnoses, how sometimes implementing an immediate management strategy like a FODMAP d…
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That's So: the Unrest documentary & ME/CFS (with Miranda Allen)
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It’s the final Tuesday of the month which means a That’s So: episode! Today I’m chatting with Miranda Allen and we are talking about the award winning documentary Unrest and all things myalgic encephalomyelitis (ME/CFS) Unrest was created by Jennifer Brae who is an independent documentary filmmaker based in LA. Jennifer was studying towards her PhD…
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Rosie Roulette & Hypermobile Ehlers Danlos Syndrome (hEDS), a rare form of brain tumor (Colloid Cyst), Fibromyalgia, & Postural Orthostatic Tachycardia Syndrome (POTS)
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Happy Tuesday! Welcome back to That’s So Chronic! Today’s episode is with Rosie Roulette, and we are chatting about hypermobile ehlers danlos syndrome (hEDS), fibromyalgia, suspected postural orthostatic tachycardia syndrome (POTS), a little bit of endometriosis, and the moment when Rosie discovered they had a rare form of brain tumor (colloid cyst…
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