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コンテンツは Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャスト コンテンツは、Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill またはそのポッドキャスト プラットフォーム パートナーによって直接アップロードされ、提供されます。誰かがあなたの著作物をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal
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From Four Kinds to One Community: The Rosalynn Carter Institute's Holistic Approach to Supporting Caregivers

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Manage episode 450174131 series 3430082
コンテンツは Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャスト コンテンツは、Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill またはそのポッドキャスト プラットフォーム パートナーによって直接アップロードされ、提供されます。誰かがあなたの著作物をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal

Established in 1987 by former First Lady Rosalynn Carter, the Rosalynn Carter Institute promotes the health, strength, and resilience of caregivers at every stage of their journey. As Mandy Barr, a caregiver coach and engagement specialist at the Institute, eloquently explained, the organization is dedicated to supporting caregivers from all backgrounds—whether they are military, veteran, or civilian families.

One of the standout aspects of the Rosalynn Carter Institute's approach is its focus on addressing the complexities and nuances of caregiving. Through research-backed programs and resources, the Institute aims to provide tailored support that meets each caregiver's unique needs.

The Institute offers valuable tools, such as the preparedness guide, which helps caregivers, especially those in military families, prepare for emergencies and disasters. By training first responders on these resources, the Rosalynn Carter Institute ensures that caregivers and their loved ones receive the support they need during challenging times.

About Mandy:

Mandy was born and raised in Plains, GA and earned her Bachelor of Arts in Dramatic Arts with a minor in English in 2004 from Georgia Southwestern State University. Throughout her career, she has served as a Secondary English teacher, Executive Director of Americus Literacy Action, Inc. an ESOL instructor and Academic Success Counselor, acquiring extensive mental and behavioral mental health training while working with at-risk individuals. She now serves as a Caregiver Coach and Engagement Specialist at the Rosalynn Carter Institute for Caregivers.

Living in Americus, she enjoys various outdoor adventures with her husband who is a veteran and three children, daughters Riley and Emily, and son, Cuyler, who has an ultra-rare brain disorder called Allan-Herndon Dudley Syndrome. Being a caregiver to a medically complex child, Mandy hopes to provide resources and support to other caregivers needing advocacy and support.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Follow us on Instagram!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!
Tune in on Whole Care Network

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185 つのエピソード

Artwork
iconシェア
 
Manage episode 450174131 series 3430082
コンテンツは Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャスト コンテンツは、Natalie Elliott Handy and JJ Elliott Hill, Natalie Elliott Handy, and JJ Elliott Hill またはそのポッドキャスト プラットフォーム パートナーによって直接アップロードされ、提供されます。誰かがあなたの著作物をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal

Established in 1987 by former First Lady Rosalynn Carter, the Rosalynn Carter Institute promotes the health, strength, and resilience of caregivers at every stage of their journey. As Mandy Barr, a caregiver coach and engagement specialist at the Institute, eloquently explained, the organization is dedicated to supporting caregivers from all backgrounds—whether they are military, veteran, or civilian families.

One of the standout aspects of the Rosalynn Carter Institute's approach is its focus on addressing the complexities and nuances of caregiving. Through research-backed programs and resources, the Institute aims to provide tailored support that meets each caregiver's unique needs.

The Institute offers valuable tools, such as the preparedness guide, which helps caregivers, especially those in military families, prepare for emergencies and disasters. By training first responders on these resources, the Rosalynn Carter Institute ensures that caregivers and their loved ones receive the support they need during challenging times.

About Mandy:

Mandy was born and raised in Plains, GA and earned her Bachelor of Arts in Dramatic Arts with a minor in English in 2004 from Georgia Southwestern State University. Throughout her career, she has served as a Secondary English teacher, Executive Director of Americus Literacy Action, Inc. an ESOL instructor and Academic Success Counselor, acquiring extensive mental and behavioral mental health training while working with at-risk individuals. She now serves as a Caregiver Coach and Engagement Specialist at the Rosalynn Carter Institute for Caregivers.

Living in Americus, she enjoys various outdoor adventures with her husband who is a veteran and three children, daughters Riley and Emily, and son, Cuyler, who has an ultra-rare brain disorder called Allan-Herndon Dudley Syndrome. Being a caregiver to a medically complex child, Mandy hopes to provide resources and support to other caregivers needing advocacy and support.

Support the show

Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com

Like us on Facebook!

Tweet with us on Twitter!

Follow us on Instagram!

Watch us on Youtube!

Pin us on Pinterest!

Link us on LinkedIn!
Tune in on Whole Care Network

  continue reading

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"I was feeling angry, I was feeling resentful." - Kate Washington JJ and Natalie sit down with author Kate Washington to uncover the emotional, financial, and mental health challenges of caregiving. Kate shares her personal journey of caring for both her mother and husband, revealing the unseen struggles caregivers face, from healthcare system hurdles to burnout and grief. Kate and the sisters, JJ and Natalie reflect on their own caregiving experiences, highlighting family dynamics, systemic issues, and the path toward healing. 🔹 The emotional toll of caregiving 🔹 Navigating healthcare challenges 🔹 The reality of caregiver burnout 🔹 Finding joy amidst the struggle About Kate Washington: Kate Washington is the author of Already Toast: Caregiving and Burnout In America (Beacon Press, 2021) and a frequent speaker on the systemic challenges facing family caregivers. Her writing has appeared in The New York Times , TIME , Eater , Catapult , and many other publications. She holds a Ph.D. in Victorian literature from Stanford University and lives in Sacramento with her two daughters, one very friendly dog, and one very unfriendly cat. Social Media Website: www.kawashington.com Twitter: @washingtonkate Instagram: @washingtonkate Facebook: facebook.com/katewashington LinkedIn: linkedin.com/in/katewashington/ Books/E-Book/Resource: https://www.penguinrandomhouse.com/books/659447/already-toast-by-kate-washington/ https://www.amazon.com/gp/product/0807055522 Other Links to Include: Media coverage of Already Toast: https://www.beacon.org/Already-Toast-P1645.aspx 📢 Don’t forget to like, comment, and subscribe for more real caregiver stories! #CaregiverSupport #ConfessionsOfAReluctantCaregiver #KateWashington #MentalHealth #CaregiverBurnout #FamilyCaregiving Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"Look for the glimmers in caregiving." - Mark Wilson Hosts JJ and Natalie sit down with Mark Wilson, a former corporate executive who left his successful career to become a full-time caregiver after his mother’s Alzheimer’s diagnosis. 🔹 Mark’s Caregiving Journey – The emotional transition from executive to caregiver 🔹 Building a Support System – How to create a strong caregiving team 🔹 Lessons in Love & Connection – The power of family support and resilience 🔹 Solo Caregiver Advice – Practical strategies for those navigating caregiving alone Mark shares his personal experiences, from the challenges of balancing career and caregiving to the joys found in daily interactions. After his mother's passing, he became a passionate advocate for Alzheimer’s awareness and patient rights, offering hope and guidance for caregivers. About Mark Wilson: Mark spent more than 20 years in corporate roles leading training, recognition and rewards programs, leadership and executive development with companies like PepsiCo, Taco Bell and yum brand. After his mom, Lena, was diagnosed with Alzheimer’s he left his career to take care of her time at home. When his mom received the diagnosis, they were told she had roughly five more years. That was an aha moment where he decided he going to do everything to prove them wrong - she was meant to live a lot longer! Love, learning, leadership, and getting results is makes “secret sauce” and he’s sharing the recipe today! Connect with Mark:: LinkedIn: www.linkedin.com/in/mark-wilson- Chapters 00:00 Introduction to Caregiving Confessions 02:51 Mark's Journey into Caregiving 06:10 Family Influence and Support in Caregiving 08:56 Transition from Corporate to Caregiving 12:08 The Diagnosis and Initial Response 15:01 Building a Caregiving Team 17:50 Creating a Positive Caregiving Environment 21:10 Lessons Learned and Best Practices 24:05 The Importance of Caregiver Relationships 28:22 The Joy of Caregiving and Connection 30:28 Finding Blessings in Caregiving 32:51 Navigating Personal Relationships 35:53 Life After Loss: Advocacy and Purpose 39:44 Empowering Caregivers: Resources and Support 48:56 Advice for Solo Caregivers 51:50 Guilty Pleasures and Personal Joys 🎧 Subscribe for more real-life caregiver stories and expert advice! 👍 Like, comment, and share to support caregivers everywhere! #Alzheimers #Caregiving #DementiaAwareness #CaregiverSupport #ConfessionsOfAReluctantCaregiver Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"Dementia gave us that gift of closeness." - Katrina Prescott In this compelling episode of The Confessions of a Reluctant Caregiver podcast, hosts JJ and Natalie dive into the world of caregiving with special guest Katrina Prescott, a media producer turned caregiving advocate. 🌟 Katrina opens up about her unexpected journey into caregiving, starting at a young age, and shares invaluable lessons on overcoming the emotional, mental, and systemic challenges caregivers face. From navigating the healthcare maze to advocating for better resources, Katrina's story is both eye-opening and empowering. Katrina also sheds light on her personal experiences caregiving for individuals with dementia. She discusses the emotional toll, finding moments of joy, and how therapeutic fibbing can help reduce anxiety for both caregivers and those they love. It’s these insights that reveal the importance of shifting societal perceptions of dementia and creating supportive communities for caregivers. 🎙️ Key Topics in This Episode: Katrina’s unexpected caregiving journey and advocacy mission Navigating the healthcare system as a caregiver The emotional and physical toll of caregiving Finding connection, joy, and meaning in caregiving relationships How therapeutic fibbing can transform dementia care Building awareness and resources for caregivers everywhere About Katrina: Katrina Prescott loves a challenge. With a career as a media producer in New York and Vancouver, she found herself stepping into a new role: full-time caregiver. That life-changing shift made her see firsthand how little support is available for caregivers. Caring for her mother through young onset dementia took Katrina in a new direction—caregiving advocacy and education. Now, as a Caregiver Coach, she draws from her experience, offering judgment-free guidance for others navigating this often isolating, stressful, and unexpectedly meaningful journey. By sharing her story openly, she hopes to spare others from the challenges she faced, aiming to reduce suffering and unnecessary work for caregivers. Her style is clear, real, and relatable, offering insights that are both effective and manageable. With her background in producing, Katrina co-created the web series Therapeutic Fibbing , which combines real-life caregiving scenarios with learning and a touch of lightness to connect with caregivers of those living with dementia. The series has resonated with over a million viewers, offering relatable insights. Her latest project, Things Not To Say To A Caregiver , uses humor to highlight the real-life challenges caregivers face, showing these situations in a way that feels both authentic and reflective of their experiences. In 2023, Katrina was recognized with the Caregiver Advocacy Award from the Canadian Centre for Caregiving Excellence. She’s passionate about dri Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"It's OK not to know everything." - Tracee Loran In this heartfelt episode of Confessions of a Reluctant Caregiver , hosts JJ, Natalie, and Tracee Loran dive into the unexpected twists and turns of caregiving. Tracy shares her deeply personal story of stepping into the caregiver role for her grandmother after a serious fall, shedding light on: 💡 Family dynamics & cultural expectations 💡 Balancing independence & caregiving responsibilities 💡 The emotional toll & career impact of caregiving 💡 Tips for self-care and preserving creativity as a caregiver From navigating complex regulations to honoring her grandmother's rich history, Tracee opens up about the challenges, lessons, and growth that come with caregiving. She emphasizes the power of storytelling, the importance of self-care, and finding joy amidst the responsibilities. Whether you're a caregiver, family member, or simply curious about the realities of caregiving, this episode offers valuable insights and inspiration. About Tracee Loran: Tracee Loran is a versatile actress, writer, producer, and content creator based in New York City.Her career took an unexpected turn when, during her first acting role, she was invited to join the writers room, which opened doors to numerous writing and production projects. Tracee has appeared in national TV commercials for renowned brands such as HBO, FedEx, AT&T, Arby’s, and Sony. For the past six years, she has balanced her time between New York City and Mississippi, where she lovingly cared for her 97-year-old grandmother. She is the creator of Black History Baddies, a celebrated video series with over 1.5 million views across social media. Tracee was inspired to create the series during her time in Mississippi after reading about Claudette Colvin, an unsung civil rights pioneer. The series spotlights the achievements of Black women trailblazers who deserve greater recognition. Tracee passionately amplifies these stories to empower and inspire. In this one-woman show, Tracee takes on multiple roles: she writes, acts, directs, edits, researches, and handles cinematography and costume design—all on her own. You can connect with Tracee on YouTube, TikTok, X, and Instagram under the handle Tracee Loran or visit her website at www.traceeloran.com . Social Media Website: https://traceeloran.com/ Twitter: https://twitter.com/traceeloran Instagram: https://www.instagram.com/traceeloran/ Facebook: https://www.facebook.com/traceeloran LinkedIn: https://www.linkedin.com/in/tracee-loran-2712896/ YouTube: Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"I finally found my purpose." - Adrienne Marioles 🎙️ Confessions of a Reluctant Caregiver brings you another raw and relatable episode as hosts Natalie and JJ sit down with Adrienne Marioles, a millennial caregiver with a story that’s equal parts inspiring and real. Adrienne opens up about her leap from the hustle and bustle of New York City to the emotional rollercoaster of caring for her mom, who’s battling Parkinson’s disease. Expect heartfelt confessions, a few laughs, and some seriously honest moments as Adrienne talks about the isolation, anxiety, and unexpected joys that come with caregiving. She gets real about how therapy and finding a supportive community helped her navigate the ups and downs of this journey. Adrienne also shares her own experience of caregiving for her mom, touching on the emotional toll, anticipatory grief, and those tough decisions that no one prepares you for. Through it all, she shows how she turned her struggles into a mission to uplift and empower others in the caregiving world. It’s a conversation full of warmth, wisdom, and a reminder that caregivers are never truly alone. Adrienne Glusman Marioles is the host of the Young Life Interrupted Podcast, the premier show dedicated to young caregivers. As a professional speaker and advocate for Millennial caregiving, Adrienne shares her personal journey as an only-child caregiver for her mother, Hetty, who lived with Multiple System Atrophy (MSA) before passing away in 2020. Adrienne’s story has been highlighted in the Wall Street Journal's article "The Call to Care for Aging Parents Comes Sooner Now," and featured on podcasts like Next Question with Katie Couric. Her experiences have also been covered in Health magazine, the Toronto Sun, Vox.com, and more. Connect with Adrienne on Instagram and Facebook @younglifeinterrupted to follow her journey and find support as a young caregiver. Social Media: Instagram: https://www.instagram.com/younglifeinterruptedpodcast/ Facebook: https://www.facebook.com/younglifeinterrupted Linked In: https://www.linkedin.com/in/adrienneglusman/ Podcast URL: Apple Podcasts: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965 Spotify: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965 Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"Let's not sugarcoat it; it's hard." - Dr. Jacob Kendall In this episode of Confessions of a Reluctant Caregiver , JJ and Natalie chat with Dr. Jacob Kendall, who opens up about his life-changing experience as a caregiver after his father’s health crisis. It’s a conversation filled with heartfelt stories, relatable struggles, and powerful insights into the rollercoaster of caregiving. Jacob shares what it’s really like to juggle the emotional and practical challenges of stepping into a caregiving role, all while trying to keep up with life’s other demands. Natalie, JJ and Jacob dive into the importance of family dynamics, planning ahead, and how multi-generational living might just be the future of caregiving. This episode feels like a conversation with old friends as they tackle the messy, rewarding, and sometimes frustrating realities of caregiving. It’s packed with tips, hard-earned lessons, and a reminder that you’re not alone on this journey. Social Media: Website: https://jacobevanskendall.com Linked In: https://www.linkedin.com/in/jacobevanskendall/ Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
"You can bring back the color and the light." - Kelci Jager Kelci Jagger shares her powerful and emotional story of overcoming tragic loss and grief through the support of her community and finding power in living in the light. Her incredible journey chronicles a series of tragic events including a dangerous accident with her two sons and her husband’s heart-breaking leukemia diagnosis. Losing a loved one can be one of the most painful experiences we go through in life, and it's often hard to imagine how we can move forward without them. If you're struggling with grief or loss, Kelci’s story is an inspiration in perseverance and love. ******* About Kelci Jager: Kelci Jager is a Certified Life Coach, Grief Coach, Registered Nurse, and Author of the book “A Million Miracles and the One That Never Came” and found herself navigating the challenging terrain of grief when she lost her 40-year-old husband to leukemia. Left to pick up the pieces of her shattered life as a solo parent to their four sons, Kelci faced the fear of her children losing her too. However, her determination to RISE and thrive became her driving force. With a blend of professional expertise and a deeply personal journey as a widow and solo parent, Kelci possesses a strong foundation and a unique perspective. She is passionately committed to providing support and guiding others on their grief journey. Links: Website: RISEwithgrief.com Social Media: Facebook: www.facebook.com/kelci.calljager Instagram: www.instagram.com/kelci.jager/ LinkedIn: www.linkedin.com/in/kelci-jager-6a3788a0/ Buy The Book “Million Miracles That Never Came” ************ Support the show Confessions Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
In this holiday episode of Confessions of a Reluctant Caregiver , we bring humor, honesty, and reflection to our caregiving journey over the last year. Join us as we look back on the highs and lows of caregiving, with no topic off-limits! Natalie discusses the launch of our new Care Forward initiative, which connects individuals in need with local resources, while JJ shares a heartwarming moment baking brownies with our mom—a reminder of both progress and challenges. We also dive into deeper, more complex topics, including anticipatory grief and Jason’s ongoing health concerns. As always, we balance the tough conversations with some light-hearted fun. The episode wraps up with a "lightning round" where we recount our most challenging, proud, and funny caregiving moments, including the story of our mom stockpiling Swiss Cake Rolls and Cokes at the nursing home. Looking ahead to 2025, we're excited to continue supporting caregivers with more podcast episodes, caregiver retreats, and ongoing efforts to make a difference in the caregiving community. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
Christina Key's life brimmed with success and vitality. But fate had different plans in store for her. An unexpected phone call shattered her idyllic existence, thrusting her into a whirlwind of chaos and uncertainty. As her mother's health hung in the balance, Christina's role transformed from a thriving tech professional to a devoted caregiver. Little did she know, this was just the beginning of a journey that would test her resilience, challenge her spirit, and uncover depths of strength she never knew she possessed. Get ready for a captivating story filled with triumph and heartache, where each twist and turn will keep you wanting more. In this episode, you will be able to: Unearth the unique hurdles family caregivers frequently meet and strategies to suitably navigate them. Discover the vital role of a supportive community in bolstering a caregiver's experience. Grasp how to balance caregiving tasks with essential self-care to maintain well-being. Immerse in inspiring tales evidencing the transformative power of supportive connections for caregivers. About Christina Christina Keys pursued the American dream: a successful career, travels, financial stability, and happiness. However, everything changed on March 16, 2013, at 3:42 when her mother suffered a life-changing stroke. With just a 1% chance of survival, Christina shifted from a career woman to a devoted caregiver. Over the span of three years, caregiving left her financially, emotionally, mentally, and physically depleted. Doctors even predicted she had just six months to live due to the stress of caregiving. Faced with a crucial decision, Christina chose to not only change her own life but also help other struggling caregivers. She transformed her personal struggle into a mission through her work with "Loving Them Forward," a local nonprofit she co-founded and now presides over as president. Additionally, as the Director of Community Growth for caregiving.com, she leads a team of nearly 200 caregiving.com Champions, fostering positive changes for caregivers across the US. Christina dedicatedly cared for her mother from 2013 to December 2022 when she passed away, and she continues to support her ex-boyfriend, whom she began caring for in 2019. Connect with Christina Website Website 2 Facebook LinkedIn Podcast Real Talk with Real Caregivers Apply to be a Champion Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
Charisma Sydnor's path crossed with Cole's at a rehab center following his teenage spinal cord injury; their professional rapport blossomed into romance and they wed in 2020. Taking over from his mother, Charisma adapted to the comprehensive caregiver role, focusing on fostering independence for Cole while ensuring their connection thrives beyond her caregiving responsibilities. They openly celebrate their life together on social networks, challenging preconceptions about disability and relationships. Their shared narrative delves into the seamless transition from dating to matrimony, weaving in the complexities and dedication involved in caregiving. Charisma speaks to establishing a healthy balance of duties and intimacy, highlighting continuous dialogue, self-care, and an optimistic perspective as cornerstones of their unique partnership. She emphasizes that a disability is not a hindrance, but rather a unique aspect of a vibrant and fulfilling life. About Charisma: Charisma Sydnor, 29, has lived most of her life as a native of Richmond, Virginia. Before becoming an entrepreneur, she pursued her master’s in Occupational Therapy at Shenandoah University. The success of her and her husband’s business led her down a new and exciting path where she was able to use her platform for a broader purpose. Together they started their vlog to bring people into their lives, their relationship, to answer some questions about how they navigate the world with some of the behind-the-scenes stuff people typically don't see, and hopefully raise awareness surrounding accessibility and dating in a wheelchair. Outside of their channel, Charisma uses her Instagram to share what it is like being a caregiver to her husband, as well as tips and tricks to maintain a healthy mind, body, and soul while caring for someone. Connect with Charisma Instagram: https://www.instagram.com/happilycharisma/?hl=en Linked In: https://www.linkedin.com/in/charisma-sydnor-96632411b/ YouTube: https://www.youtube.com/channel/UCA5Zfb-OOm7eDHHa8iu9izQ Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
This week’s episode gives us a powerful and insightful look into the life of Aditya Akella, a 16-year-old caregiver for his younger brother with autism. Aditya's story is one of resilience, responsibility, and a deep commitment to his family. From navigating cultural differences in caregiving between India and England to balancing his academic and social life, Aditya's experiences offer a rare and valuable perspective on the challenges and triumphs of being a young carer. Aditya demonstrates a level of wisdom and maturity that belies his young age. He eloquently articulates the importance of understanding the unique needs of each young carer, rather than making assumptions or providing one-size-fits-all solutions. Aditya's advocacy efforts, including speaking at the House of Lords and participating in a documentary, further highlight his dedication to raising awareness and creating positive change for young carers like himself. Aditya touches on the importance of self-care and finding balance as a caregiver. He shares his personal strategies, such as spending time with his beloved dog and indulging in the occasional video game or hot chocolate, as ways to recharge and maintain his own well-being. Aditya’s story serves as an inspiration to other young carers, reminding them that they are not alone and that their experiences, though challenging, can also be a source of strength and personal growth. About Aditya: A self-described “regular teenager in England”, Aditya is interested in cars, public speaking, sports and politics. He is a proud older brother for his younger brother, age 11, who has severe autism, ADHD, and is non-verbal. Aditya share, “A lot of carers fall into the trap of feeling insecure or restricted by their role, though being a carer is more of a launchpad than it is a well”. Connect with Aditya: Linked In: https://www.linkedin.com/in/aditya-akella-349297267/ Blog: https://akellatech.blogspot.com/ ** The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.** Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
Marty Schreiber has dedicated his life to advocating for Alzheimer's patients and their caregivers. As the former governor of Wisconsin and author of the acclaimed memoir "My Two Elaine's", Marty draws from his own deeply personal experience as a caregiver for his wife of 61 years, Elaine. For eight years, Marty cared for Elaine in their home as her Alzheimer's progressed, but he now admits he was unprepared for the physical and emotional toll it would take. Marty candidly shares his struggles, from trying to keep Elaine in his world to nearly working himself to exhaustion. He also opens up about difficult decisions like placing Elaine in assisted living and the guilt he still feels over not supporting his children through the process. However, Marty channels his regrets into wisdom, urging caregivers to accept help, join their loved one's reality, and focus on living fully themselves to best support their person. Through humor, heartache, and hard-won insight, he offers invaluable insights aimed at aiding fellow caregivers to embrace support, understand the dual realities of their loved ones, and nurture their own well-being for more effective care. About Marty: Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer’s caregivers and persons with dementia. Reaching audiences nationwide at live events and through various forms of media, Marty uses humor and compassion as he shares lessons from his ongoing, decade-plus journey as a caregiver. His speaking tour takes him to conferences, civic organizations, senior communities, libraries, and more around the country. He has given more than 300 presentations since launching his awareness campaign in late 2016. Whether in Texas, Idaho, New York, Missouri, Florida, Ohio, or closer to home, caregivers tell Marty that his message encourages them and hope that they can manage their challenging situation. Marty’s book, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, is winning acclaim from caregivers across the country. It was rated as the No. 11 “Best Alzheimer’s Book of All Time” by bookauthority.org and was named to Caring.com’s list of “Best Caregiving Books” of both 2017 and 2018. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
Kendall Cloeter's passion for affordable housing and community revitalization shines through in her work with the Renovation Alliance. As a self-described "social worker by trade," Kendall brings a deep understanding of the challenges low-income homeowners face in the Roanoke Valley and a commitment to making a difference. Under Kendall's leadership, the Renovation Alliance has grown from a small group of 50 volunteers rebuilding just five homes 25 years ago to an organization that now aims to serve 100 homes annually. Kendall's dedication to preserving affordable housing and empowering homeowners to age in place with dignity is genuinely inspiring. Through a combination of volunteer labor and skilled professional partnerships, the Renovation Alliance tackles a wide range of critical home repairs, from simple tasks like installing grab bars to more complex projects like HVAC replacements. Kendall's insights into the impact of the Renovation Alliance's work are both heartwarming and eye-opening. By preserving homeownership and the equity that comes with it, the organization is helping to address issues of generational wealth and social justice. Moreover, the Renovation Alliance's focus on prioritizing the needs of older adults, individuals with disabilities, veterans, and single-parent households with young children underscores their holistic approach to community revitalization. Kendall's passion for this work shines through as she shares the stories of homeowners who have regained their independence and sense of pride in their homes while strengthening the fabric of the Roanoke community. About Kendall: Kendall Cloeter, a native of Roanoke, Virginia, is deeply connected to her community, where she now raises her family. Holding a Master of Social Work degree, Kendall discovered her passion for affordable housing while serving in AmeriCorps with Renovation Alliance, the organization she proudly rejoined in 2023. Her work in AmeriCorps ignited her commitment to preserving affordable housing and enhancing housing quality. During her time in Richmond, Virginia, Kendall spent five years addressing housing and homelessness issues with the Virginia Department of Housing and Community Development. This experience broadened her understanding of housing challenges and strengthened her dedication to making a difference. Returning to Renovation Alliance, Kendall applies her expertise to support her community and advocate for improved housing solutions. Kendall resides in Roanoke County with her husband, two children, and their dog, Franklin. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
Thom Deleuw's story reflects dedication and a father's love. After a 34-year career in law enforcement, Thom found his true purpose when his son, Jack, had a serious motorcycle accident that left him paralyzed from the chest down. Thom became Jack's full-time caregiver, viewing it as a "willing obligation" that highlights their strong bond. Thom's journey has been marked by resilience and adaptability. He prepared for the “new role” by taking online courses and utilizing the VA caregiver support program, ensuring he was equipped to provide the specialized care Jack required. Despite the challenges, Thom maintains a positive outlook, emphasizing that the work doesn't "seem so bad" when you're caring for someone you love so deeply. His willingness to take on the role, rather than outsourcing it, speaks volumes about his unwavering commitment to his son's well-being. Throughout their journey, Thom and Jack have faced setbacks, including a second motorcycle accident that left Jack paralyzed from the sternum down. Yet, their unbreakable spirit shines through, with Thom expressing pride in Jack's determination to regain his mobility and independence. The duo's shared sense of humor and camaraderie have been instrumental in navigating the ups and downs, demonstrating the power of a father-son relationship rooted in unconditional love and support. About Thom: Thom was born on December 8, 1954, in Norfolk, Virginia, and was raised in a middle-class family where hard work was valued. After spending his early years in Virginia, he moved to Florida for two years before returning to North Carolina, where he graduated from high school in Greensboro in 1973. With aspirations of becoming a police officer, Thom joined the Army in November 1973 and attended military police school. His first duty station was in West Berlin, Germany, during the time the Berlin Wall was still up, which proved to be a significant adventure. After three years, Thom returned home, briefly pursued a golf career, and worked as an assistant golf pro before becoming a police officer in Portsmouth, Virginia. In 1984, he moved back to North Carolina, where he began his long and rewarding career in law enforcement, eventually meeting his wife while on duty. Thom's life took another turn when he became a dedicated father to his son, Jack. Their bond deepened over the years, especially after Thom gained full custody when Jack was 12. Jack followed in his father's footsteps and enlisted in the Army, embarking on his own journey that included both triumphs and challenges. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
This week’s educational episode showcases the incredible work of Semper Fi and America's Fund, an organization that has been providing vital support to service members, veterans, and their families for over 20 years. At the heart of this organization is Sondria Saylor, the Executive Vice President, whose personal connection to the military community runs deep. Sondria's connection to the military began in 1984 when she became an active-duty spouse. In 2003, she saw the challenges faced by wounded service members returning from Iraq and knew action was needed. Along with other military spouses, Sondria met medevacs at the hospital, providing essentials and comfort to these brave individuals. This grassroots effort grew into the Semper Fi and America's Fund, which has provided over $500 million in support and programs to 33,000 service members across all branches of the U.S. armed forces. Sondria's dedication to the mission of Semper Fi and America's Fund is truly inspiring. Through comprehensive case management and lifetime support, she and her team ensure that service members, caregivers, and their families receive the care and resources needed to navigate recovery and reintegration. Semper Fi and America's Fund serves as a beacon of hope and community for those who have sacrificed for our country, offering caregiver retreats, sports programs, and holiday celebrations. About Sondria: Sondria is the Executive Vice President of Semper Fi & America’s Fund, where she oversees Case Management for the Western Region, Communications Operations, and the Apprenticeship, Jinx McCain Horsemanship, and Veteran to Veteran (V2V) Programs. Before her current role, Sondria was Vice President of Case Management in the Western Region from 2014 to 2021, Senior Director of Case Management from 2005 to 2014, and Director of Donor Operations from 2004 to 2005. Sondria’s connection to the military began in 1984 when she became an active-duty spouse. From its early years in the 1980s until 2004, she was involved in the evolution of Marine Corps Family Readiness, serving as Key Volunteer Advisor to the 1st Marine Division. As Key Volunteer Advisor in 2003, she worked alongside Karen Guenther to support returning wounded at the Naval Hospital at Camp Pendleton, which led to the creation of Semper Fi & America’s Fund. Sondria’s contributions to Family Readiness earned her induction into the US Field Artillery Honorable Order of Molly Pitcher in 1993. In 2007, her work with Semper Fi & America’s Fund was recognized by Cookie Magazine with the 1st Annual Smart Cookie Award, honoring women making a difference. Raised and educated in Fairfax, VA, Sondria has extensive experience in small business ownership and management. She has been married to her husband Ben, a retired Marine Colonel, for 38 years, and they have two adult sons. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network…
 
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