BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Ta ...
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A podcast about evil and complicated queers in history. Why do we remember our heroes better than our villains? Hosted by Huw Lemmey and Ben Miller. Learn more: www.badgayspod.com
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What do you do when you’ve achieved your dreams only to realize- your work’s just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris’s life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who’s ever chased a dream. Subscribe to BloodStream Media’s The Final Summit wherever you get your ...
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Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Co ...
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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.
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Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strate ...
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The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit Pharm ...
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Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.
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Content independently created by BloodStream Media. Novartis is our exclusive advertising partner. Introducing "PNH: Facts, Fiction & FYI," a limited series that unveils the enigmatic realm of Paroxysmal Nocturnal Hemoglobinuria (PNH). Join us as we journey through real stories, medical insights, and groundbreaking advancements, offering a comprehensive view of PNH. Explore the lives touched by this rare blood disorder and discover the intersection of facts, fiction, and must-know informatio ...
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Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it’s everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.
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The SIDP Podcast
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I am a citizen of this world prepared for the luck that is about to present to me. I strive to create a dynamic ripple through my human bloodstream with focused intent to participate in the manifestation of a world which is kind.
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Delving deep into the brain and bloodstream of artists, creators and creatives. Join Venus Bleeds, a queer immigrant musician and visual artist discuss physical, mental and environmental systems that affect creativity, and artistic identity with renowned artists from all over the world. This is a show about mental health, patriarchy, feminism, creativity and productivity. We are humbled by the beauty of communication, and the power of sharing each other's voices. What does it mean to be a sl ...
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Multipure is here to help you learn about better water and better health. Join us as we discuss news, technology, current events, and more, with an eye toward better understanding of water issues, water treatment, health, and safety. Multipure is here to improve the water, health, and lives of you and your family. For Life. For You.
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What is Artificial Intelligence? It's a big part of our daily lives and you want to know. You need to know. But the explanations are so long and boring. Let me give you something short and sweet. Join me, Dr. Peper, for 5 minute, pleasing, and easy to understand flash talks about everything artificial intelligence. Short and Sweet AI.
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Is there a darker side to the extraordinary accomplishments of people with bleeding disorders? Guest segment host, Luke Pembroke, ask just that on the latest I’m Fine, featuring blood brother and Paralympian, Jack Bridge. Also, Patrick and Amy hit up the Chief Patient Officer Summit and got insight on what true patient inclusivity is all about. Plu…
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#101 – BLING III: Does Continuous Infusion Make the Whole Place Shimmer
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Join Prof Jason Roberts and Dr. Erin McCreary for this episode dedicated to discussing the results of the BLING III trial, which explored the use of continuous versus intermittent infusion of a beta-lactam antibiotic in critically ill patients. Reference:Continuous vs Intermittent β-Lactam Antibiotic Infusions in Critically Ill Patients With Sepsis…
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For many of us, the mountains we climb aren’t physical. They’re spiritual, mental, psychological, and ultimately inspirational. In this season, we’re hearing from people with bleeding disorders from all over the world, who faced their own final summit, and fought for their dreams despite all obstacles. Tune into Season Three of The Final Summit. Co…
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Live from EOS Connection 2024, Ryan Piansky and Mary Jo Strobel
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Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Mary Jo Strobel, APFED’s Executive Director, have a conversation about EOS Connection 2024, live at the conference. In this episode, Ryan and Mary Jo discuss highlights of EOS Connection 2024 including …
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#100 – Tackling Tetracyclines: Breakpoints 100th Episode!
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Drs. Jeffrey Pearson and Jason Pogue join Dr. Jeannette Bouchard as they take on all things tetracyclines. Starting with tetracycline, they walk through differences between each generation and drug in this class, from dosing all the way to pertinent resistance mechanisms. You will not want to miss out on this one! This podcast was supported by an u…
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On this episode of Thal Pals: The Alpha Beta Revolution, hosts NinaMaria Badalementi and Dr. Kevin Kuo dive into the topic of iron overload, a critical issue for patients with thalassemia. They discuss the body's mechanisms in handling iron, the dangers of iron overload due to blood transfusions, and the importance of chelation therapy. Dr. Kuo emp…
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On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
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Janie Davis, Director of Patient Advocacy at Agios
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Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…
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On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role…
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Extra Bad Gays June 2024: Pride From Stonewall to Subaru (Trailer)
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Starting with a reading from Martin Duberman's book Stonewall about the riots that kicked off a revolution, we reflect on the history of increasing corporate involvement in Pride, some unreasonably horny Subaru ads, a Raytheon Pride slogan from this year that made both of us momentarily speechless, and the politics and ethics of engaging with corpo…
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What to Know about Progression in Polycythemia Vera
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On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of pr…
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#99 – Don’t be CRABby: Acinetobacter baumannii review
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Drs. Yohei Doi and Emily Heil join Dr. Erin McCreary to dive into one of the most requested topics from our listeners and something that is consistently confusing in clinical practice: Acinetobacter baumannii! Hear from experts on their experience with treating this tricky organism and their thoughts on best approaches when you are presented with C…
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The multi-faceted role of HTC social workers
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Patrick sits down with HTC social workers, Kathaleen Schnur and Dianne Bartlett, about the ever-evolving role of social workers in the HTC comprehensive care system. Plus, on the latest I’m Fine, Patrick answers the question, What do clotting factor levels mean to me in this new age of hemophilia treatment? Show Notes: Subscribe: The BloodStream Po…
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The Importance of Community-Based Organizations for the SCD Community
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Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…
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Artificial Intelligence and Patient Education
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Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED’s Health Sciences Advisory Council, have a conversation about artificial intelligence (AI) and patient education, with guest …
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Today's special guest is Will Tosh, Head of Research at Shakespeare's Globe, London, and the author of a new book, “Straight Acting: The Many Queer Lives of William Shakespeare.” Having answered the obvious question in the prologue, the book becomes a sort of emotional biography of Shakespeare’s private life, but uses that his life and his work to …
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On this episode of Thal Pals, your host NinaMaria Badalementi, along with special guests Yasmeen and Paris, takes listeners through a detailed discussion about Cooley's Care Walks. We start with Yasmeen and Paris sharing personal experiences with thalassemia, the significance of community, and encouraging participation in Cooley's Care Walks. The e…
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial do…
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Food-induced Immediate Response and Eosinophilic Esophagitis
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Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, have a conversation about food-induced immediate response in eosinophilic esophagitis (E…
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The Warrior Poet: A Rising Star: Dr. Alex Glaros
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…
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#98 – Uncomplicated UTIs: Getting Uncomfortable with Uncertainty
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Drs. Chris Crnich, Angela Huttner, and Jeannette Bouchard join Dr. Erin McCreary to discuss all things uncomplicated UTIs! Gain insight into where our new guidelines may be headed and pearls from experts in a variety of clinical settings, including a clinic specifically devoted to UTIs! Funding for this podcast was supported by an independent medic…
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Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters program. Plus the final Elite Athletes segment with Paul McLaughlin and I’m Fine with Luke Pembroke. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I’m Fine and…
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On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
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#97 – Hot Topics: What Did You Miss in Infectious Diseases in 2023-2024 (LIVE from MAD-ID)
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In this special LIVE podcast episode, Drs. Emily Heil (@emilyheil) and Mandee Noval (@MandeeNoval) present the latest and greatest in ID literature from MAD-ID 2024 (@MAD_ID_ASP) in Orlando, FL. They cover everything from ECCMID late breakers to stewardship to the best things to come out of a good old shortage! You won’t want to miss this one! Goog…
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UK Blood Inquiry Clive Smith & Laurence Woollard
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Our blood brother buds, Clive Smith & Laurence Woollard join us today to share the latest from the ongoing saga of UK Blood Inquiry, plus our latest Gene Therapy segment has Mason Buxton’s story (the first hemophilia B patient to be commercially dosed with gene therapy!). Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, vi…
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Navigating the Currents: Interferons in the Treatment of Polycythemia Vera
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On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia. If you’d like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia). Connect w…
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Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, have a conversation about the Spoon Theory. In this episode, Ryan and Holly discuss the …
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On the Shoulders of Giants is a hit (!) and I’m Fine is back
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Hear about the premiere of the On the Shoulders of Giants film from HFA Symposium with Patrick and Amy. Plus the I’m Fine segment is back with Luke Pembroke and Hazri Aris is featured on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. On the Sho…
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We close out our season with the story of a dashing tomboy who was the first woman to found a British political party. The only problem: that party was the British Fascists. Subscribe to EXTRA BAD GAYS, our monthly conversation about queer life, culture, and politics. ----more---- SOURCES: Colin Cross, The Fascists in Britain (London: Saint Martin'…
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TRAILER: Extra Bad Gays April 2024 - Tory Sex Scandals and Capote's Feud
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Enjoy a sneak preview of EXTRA BAD GAYS, our monthly, subscriber-only show on contemporary queer politics and culture. For the full episode and a new episode every month, click 'subscribe' on Apple Podcasts or join our Patreon by clicking here.Huw Lemmey & Ben Miller による
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Revving Up for Clinical Trial Awareness in the Motor City
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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of t…
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#96 – The Tortured Stewards & Surgeons Department
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Episode Notes The Society of Infectious Diseases Pharmacists is excited to invite you to the first ever meeting (via Breakpoints) of The Tortured Stewards & Surgeons Department. Today’s agenda items: optimal management of perioperative antibiotics and prevention of surgical site infections. Drs. Trisha Peel (@DrTrishaPeel), Michael Calderwood (@Cal…
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Today’s subject had a multi-hyphenate name and a multi-hyphenate resume––, in his 55 years of life, he was an adventurer, a geologist, a spy, a dinosaur scientist, one of the founders of paleobiology, the world’s first airplane hijacker, a founder of the field of Albanian studies, a cosplay artist, and a murderer. Born in 1877 in Transylvania, the …
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We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC. Show Notes: Subscribe: The B…
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"If you have to take an beautiful enslaved convert boy from another province to become your lover, and then you fall hopelessly in love with him, and then promote him and he attains great power, do be aware than he might actually want to take your throne." Somehow, this extremely specific lesson was forgotten by two generations of rulers. Join us i…
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Marthe Hanau built a several-hundred-million-franc financial powerhouse: which turned out to be a fraud. Her investors had been promised returns of 8% interest on savings and in investments forty percent a year —but by the time she died in prison, they were owed a hundred and fifty five million francs. Some people even credit her spectacular swindl…
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Gastro Girl and GI Diseases: Conversation With Jacqueline Gaulin
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Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, speak with Jacqueline Gaulin, the Founder of Gastro Girl, a source of infor…
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#95 – A to Z on R&D: Challenges and Solutions for Sustained Antimicrobial Drug Development
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In this episode, Drs. Helen Boucher (@hboucher3), Ramy Elshaboury, and Mike Dudley (@MikeMNDudley) join host, Megan Klatt (@MeganKlatt3), to discuss barriers to antimicrobial drug development, potential incentives and legislation to promote market growth, and what we can do to ensure the antimicrobial pipeline doesn’t run dry. Learn more about the …
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#94 – Lock, Stock, & Sterilize: Strategies to Optimize Antimicrobial Lock Therapy & Prevent/Treat Catheter-Related Bloodstream Infections
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It's time to arm yourselves with all the resources on antimicrobial locks! Join our experts, Drs. Louise-Marie Oleksiuk (@CanRowPharm), Nasia Safdar (@NasiaSafdar), Joel Topf (@kidney_boy), and our wonderful host, Dr. Julie Justo (@julie_justo), to discuss the ins and outs of antimicrobial locks and how to implement them! Funding for this podcast w…
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Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
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Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community m…
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Today's episode is about England and its capacity to be deeply weird. Weget into one of England's weirdest, bloodiest, and maybe horniest moments, the English Reformation: a time of enormous tumult and violence, but also new ideas that reconfigured and reshaped the world. Today’s Bad Gay is perhaps an unlikely and unfamiliar candidate, but one whos…
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Warning: this episode contains discussions of child sexual abuse, sexual harassment, and workplace sexual assault. Listener discretion is advised. Many people may have seen Maestro, a biopic about the American conductor Leonard Bernstein, a handsome and extroverted communicator. The next most famous gay Jewish conductor of the 20th century was, in …
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We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it! Show Notes: Subscribe: The …
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This episode has everything: a tyrannical little boy king, a dictator who wanted to overthrow the Roman pantheon and install a meteorite as the object of a new monotheism, prostitution and vestal virgins, and drowning your party guests in rose petals. We break down Elagabalus: the myth, the legend, the gender-bending icon and the searcher for the b…
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The Family Risk of Eosinophilic Gastrointestinal Diseases
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Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Mary Jo Strobel, APFED’s Executive Director, speak with Dr. Kathryn Peterson, MD, MSCI, a Professor of Gastroenterology at the University of Utah Health. In this episode, Ryan and Mary Jo intervi…
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Today’s subject was an uneducated woman who was born in approximately 1880 and rose in her nearly 70 years of life from enslavement to sex work to female king. She was a leader of her community of Enugu-Ezike in present-day Nigeria and a collaborator with British colonialism in the region. Finally removed from power by British officials and local e…
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