Ep 17: Neurodivergence and Paving the Way for a More Equitable Healthcare System With Robin Ennis

You Don’t Want a Hug, Right? The Hilarity and the Hard of Raising Humans with Neurodiversity

Few things are more important to us as humans, especially to neurodivergent children, than access to quality healthcare. But did you know that Black and Hispanic children are less likely to be identified with autism than white children? This simple fact invites a closer look into the social currency that many of us take for granted and why the healthcare system looks vastly different to those of marginalized populations.

In today’s episode, we’re interviewing Robin Ennis, a social worker and the LEND Self-Advocacy Discipline Director at JFK Partners on her own experience with health disparities among BIPOC Individuals. Robin shares her journey with hydrocephalus, how the misdiagnosis of her condition led to the loss of her vision, and how simply being heard by her providers might have changed the trajectory of her life. Whether you come from an underrepresented population or not, this episode promises valuable insight into the ways healthcare can look a little different for all of us and how to use your voice to advocate for yourself and your children.

In this episode, you’ll learn…

[1:37] Our experiences navigating the holiday season with neurodivergent children

[11:40] Robin’s personal experience with health disparities among BIPOC Individuals

[21:09] How the misdiagnosis of Robin’s condition led to the loss of her vision

[31:27] Disability, grief, and how Robin is making meaning out of her story

[40:24] Client work and the impact of race on a neurodivergence journey

Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-17-neurodivergence-and-paving-the-way-for-a-more-equitable-healthcare-system-with-robin-ennis

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