Transitioning Young Adults With Sickle Cell

Vitamin SC3

The Sickle Cell Community Consortium powers the VitaminSC3 Podcast. Today's show is brought to you by the Caring is Giving segment with Elle Cole.

During this episode, I spoke with Francine Baker, a wife, mother, caregiver, and student. In episode 12, Francine spoke with me transparently about the highs and lows of parenting a child with sickle cell disease. Francine has two children who are living with sickle cell disease. Her son and daughter are now young adults who have gone through the transition process.

Transition is when pediatric patients move from pediatric care to adult care. Sometimes this change means the patient receives new doctors and a unique team of healthcare professionals. Francine helps moms and dads understand that the role of a parent is not just to be a caregiver, but they should also be an advocate, supporter, listener, and at times healthcare coordinator. She also spoke about the shift students who enter college must take when they are away at school and have to learn a new team. Sometimes getting the college and home healthcare team to communicate with each other can be challenging, but Mrs. Baker shared what works well for her and her daughter to make it a seamless process.

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