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#90: OT and Ehlers-Danlos Syndrome with Emily Rich
Manage episode 444543781 series 2573061
Unfortunately, research on the lived-experience for those with Ehlers-Danlos Syndrome shows us that we as a profession need to be doing a better job.
People with Ehlers-Danlos Syndrome report:
- A lack of reliable information for themselves
- Social stigma from peers.
- Lack of awareness of EDS in the healthcare community
As occupational therapy professionals, there is much we can contribute to supporting this population. And, today we’ll look at a self-management program that is grounded in behavior change theory and we co-designed with people with lived experience of EDS.
Next week we will welcome to the podcast, an occupational therapist who has EDS and also treats EDS clients in her clinical practice, Emily Rich, PhD, OTR/L. Emily and I will discuss self-management, along with assessment and treatment of EDS.
You can find more details on this course here:
https://otpotential.com/ceu-podcast-courses/ot-and-ehlers-danlos-syndrome
Here's the primary research we are discussing:
Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): an analysis informed by behaviour change theory.
153 つのエピソード
Manage episode 444543781 series 2573061
Unfortunately, research on the lived-experience for those with Ehlers-Danlos Syndrome shows us that we as a profession need to be doing a better job.
People with Ehlers-Danlos Syndrome report:
- A lack of reliable information for themselves
- Social stigma from peers.
- Lack of awareness of EDS in the healthcare community
As occupational therapy professionals, there is much we can contribute to supporting this population. And, today we’ll look at a self-management program that is grounded in behavior change theory and we co-designed with people with lived experience of EDS.
Next week we will welcome to the podcast, an occupational therapist who has EDS and also treats EDS clients in her clinical practice, Emily Rich, PhD, OTR/L. Emily and I will discuss self-management, along with assessment and treatment of EDS.
You can find more details on this course here:
https://otpotential.com/ceu-podcast-courses/ot-and-ehlers-danlos-syndrome
Here's the primary research we are discussing:
Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): an analysis informed by behaviour change theory.
153 つのエピソード
すべてのエピソード
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1 #98 Pediatric Feeding Therapy with Suzie Driscoll 55:27
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1 #97 Grip Strength as a Vital Sign with Gabriella Francis 57:55
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1 #96: OT and Value-Based Care with Dana Strauss 1:24:00
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1 #95: What is OT in 2025? with Sarah Brzeszkiewicz 1:01:42
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1 #94: OT and Clinical Decision Support with Brad Willingham 1:10:19
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1 #92: OT and Multiple Sclerosis with USA Paralympian Sarah Adam 59:17
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1 #91: Motor Learning in Neuro Rehab with Katie Riccio 1:02:48
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1 #90: OT and Ehlers-Danlos Syndrome with Emily Rich 1:13:43
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1 #89: AI in Documentation with Dennis Morrison 1:16:22
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1 #88: OT and Driving with Ganesh M. Babulal 1:05:30
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1 #87: Community-based OT with Ryan Lavalley 1:04:06
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1 #86: Emotional Disability and OT with Michelle Flemen-Tung 1:07:02
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1 #85: OT and Interoception with Kelly Mahler 1:04:56
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