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Unveiling the Unseen Part 1: Aella's Fight for Diagnosis Amidst Medical Gaslighting
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In this gripping episode of Occult Awareness, Aella Askew bravely shares her harrowing journey through a maze of undiagnosed chronic illnesses and medical gaslighting.
From a childhood filled with pain and dismissed symptoms to a life-altering spine injury, Aella's resilience shines through as she fights for answers and validation. Join us as we delve into the complexities of invisible illnesses, the power of self-advocacy, and the importance of finding community and support.
- Childhood and the Circus
- Aella Askew, a woman with Ehlers-Danlos syndrome (EDS) and other chronic illnesses, shares her lifelong struggle with pain and medical invalidation.
- Aella's journey took an unexpected turn when she joined the circus, where she found a sense of belonging among fellow misfits. However, her physical ailments worsened over time, leading to her semi-retirement in 2018.
- A Life-Altering Injury
- While working as a metal fabricator, Aella sustained a severe spine injury exacerbated by a chiropractor's mishandling, leaving her hospitalized and homeless.
- Aella describes her struggles after the injury, including homelessness, reliance on Medicaid and disability benefits, and the challenges of finding affordable housing.
- Medical Gaslighting and Misdiagnosis
- Aella discusses her experiences with medical invalidation and misdiagnosis.
- Aella talks about her advocacy efforts and how she became her own "mama bear" in seeking answers and support.
- She discovered the importance of community and connected with others with EDS, learning about ring splints and other resources.
- PANS/PANDAS Diagnosis
- Aella shares her various diagnoses, including PANS/PANDAS, a neuroinflammatory disorder that can cause a range of symptoms.
- She discusses the cause of her PANS/PANDAS and the challenges of managing its symptoms, such as OCD, rage attacks, and tics.
- Ongoing Challenges and Medical Gaslighting
- Aella expressed her frustration with the medical system and the lack of understanding and validation she receives from doctors.
- She details specific instances of being dismissed and misdiagnosed, highlighting the impact this has on her mental and emotional well-being.
- Living with Chronic Pain and its Impact on Daily Life
- Aella discusses the difficulties of finding effective treatments and the constant struggle to manage her symptoms.
- She also shares her experiences with physical therapy and the limitations she faces due to her condition.
Don't miss this eye-opening conversation that sheds light on many's unseen struggles.
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