Living with DYS- Interview with Ambre Minty

My Invisible Disease

"Unlock your inner strength and experience the power of resilience with a chronic illness journey that is truly iconic."
"My health may be chronic, but this ass is iconic."- Ambre Minty
Ambre Minty is a mum and chronic illness warrior, patient leader, feeding tube advocate, and Oley ambassador. She has been diagnosed with dysautonomia, gastropresis, Ehlers Danlos, colonic inertia, and eosinophilic esophagitis and has used IV fluids, feeding tubes, and TPN to manage her conditions.

Ambre Minty was living with a variety of medical conditions, struggling with extreme nausea and fatigue, and unable to eat properly. After three surgeries, discovering IV fluids, and needing a feeding tube, Botox saved the day and allowed her to eat again. With the help of her family and friends, Ambre overcame her health challenges and found a passion for advocacy, lobbying to make medical nutrition needs more accessible for everyone. Despite the pain and frustration along the way, Ambre found strength and a newfound appreciation for food, finding joy in simple moments like tie-dye T-shirt making and getting the occasional ice cream treat.
In this episode, you will learn the following:
1. Living with Gastrointestinal Conditions: Discover how Ambre Minty managed her Gastropresis, Eosinophilic Esophagitis, and Colonic Inertia.
2. Advocacy and Lobbying: Learn how Ambre Minty is working to pass legislation to improve access to medical care and nutrition for those with gastrointestinal conditions.
3. Self Care: Explore how Ambre Minty practices self care and her advice on making memories with her son.
Connect with Ambre Minty:
Instagram: https://www.instagram.com/living_with_dy
Website: https://livingwithdys.com/
Connect with me:
Instagram: https://www.instagram.com/myinvisiblediseasepodcast/
Facebook: www.facebook.com/groups/myinvisibledisease
YouTube: https://www.ychannel/UC84nwpRzu-EzBtz7Z7Yz6zw
Twitter: www.twitter.com/MyInvisibeDis
Website: https://myinvisibledisease.com
Chapter Summaries:
[00:00:04]
Welcome to my Invisible Disease podcast. We are here to share our struggles and hacks as two moms living with chronic illness. Tune in and join our community as we share stories and experiences.
[00:00:59]
From severe gastropresis, to eller's danlos, to colonic inertia full gi failure. It's been a journey of living with gi conditions and getting the most basic of care. Botox saved the day.
[00:08:13]
This is, I think, too, where the idea of the invisible disease comes in. People don't realize some of these accommodations that need to be made for your health. We just kind

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Connect with us here:
Website: https://myinvisibledisease.com
YouTube: https://www.youtube.com/https://www.ychannel/UC84nwpRzu-EzBtz7Z7Yz6zw
Twitter: https://www.twitter.com/MyInvisibeDis
Facebook: https://www.facebook.com/groups/myinvisibledisease

Instagram: https://www.instagram.com/myinvisiblediseasepodcast/