Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting

Stronger Every Day

SED 514: Cha Cha Moments: Navigating Anxiety, Impulsivity, and Focus Challenges in Rare Disease Parenting

What would you do if your child faced anxiety so intense it disrupts their daily life, paired with impulsivity and struggles with focus?

In this episode, we dive into Tess’s journey with anxiety, impulsivity, and executive function challenges—issues that may resonate with many parents navigating similar struggles. Learn about how we’re uncovering the roots of these behaviors and seeking effective strategies to help Tess thrive.

Discover how anxiety and attention challenges can compound care complexities for children with rare conditions.

Learn about the tools and assessments we’re using, like the NICHQ Vanderbilt Scale, to better understand these behaviors.

Gain practical insights for managing impulsivity and staying resilient as a caregiver.

Hit play now to hear this heartfelt first part of Tess’s story and take away valuable tips to support your own caregiving journey.

ALSO: I'm launching a mobile app to help men connect with each other. The idea is to see our friends more often, and make new friends, too. More information is available here.