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Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 1)
Manage episode 327335873 series 3222835
コンテンツは Tracey Hoyng によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャスト コンテンツは、Tracey Hoyng またはそのポッドキャスト プラットフォーム パートナーによって直接アップロードされ、提供されます。誰かがあなたの著作物をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal。
Mel's daughter Katelin is 26 and living with Rett Syndrome.
It was such an honour to sit down with Mel not only once, but twice, for the podcast. I openly admit that I have alot of learning to do, so talking with Mel was such a great learning experience for me.
We talk about a range of things - from her writing, to Atypical Rett Syndrome, to the clinical trials they were involved in. Mel's blog Trail to a Texas Trial is an amazing recount of everything they've experienced with Rett Syndrome and with the Trofinetide trial.
This is Part 1 of our chat!
To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.
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Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families.
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Thanks so much for listening,
Tracey
--- Send in a voice message: https://podcasters.spotify.com/pod/show/remarkablepodcast/message13 つのエピソード
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