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A Family's Fight to Find a Cure
Manage episode 435009107 series 2920849
Detroit parents Bridget Finn and Sam Beaubien found their lives upended when their daughter, Florence, was diagnosed with a rare genetic disorder called STXBP1. As they adjusted to a new reality for their family, they also worked to fund research for their daughter's disorder. On today's episode, we talk to Bridget and Sam about their family's story.
GUESTS:
Bridget Finn, Director, Art Basel Miami Beach
Sam Beaubien, audio producer and musician
Looking for more conversations from Stateside? Right this way.
If you like what you hear on the pod, consider supporting our work.
Music in this episode by Blue Dot Sessions.
See omnystudio.com/listener for privacy information.
125 つのエピソード
Manage episode 435009107 series 2920849
Detroit parents Bridget Finn and Sam Beaubien found their lives upended when their daughter, Florence, was diagnosed with a rare genetic disorder called STXBP1. As they adjusted to a new reality for their family, they also worked to fund research for their daughter's disorder. On today's episode, we talk to Bridget and Sam about their family's story.
GUESTS:
Bridget Finn, Director, Art Basel Miami Beach
Sam Beaubien, audio producer and musician
Looking for more conversations from Stateside? Right this way.
If you like what you hear on the pod, consider supporting our work.
Music in this episode by Blue Dot Sessions.
See omnystudio.com/listener for privacy information.
125 つのエピソード
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