Trisomy 18 公開
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Having a medical fragile child requires hours and days to months and for some years, in medical ic setting. There is much to learn, do and fight for as well as tend to the child. This is how I had to step away from some roles and ask for grace as I learned how to bring us all into our new life with the newest member…
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Who do you look to for support and information on caring for and loving a child with Rare Trisomy? Medical care has its place. But they don’t know this life, if they do they help. Your child deserves those who can and will help. Kace a dear friend passed away and his two years of life is a testimony to the purpose and joy of life, even with a diagn…
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Hello, in this episode I discuss the diagnosis , pregnancy and neonatal time for Rose. This is a combination of personal experiences and feelings and what actions I took that I feel helped save her life. I hope it encourages you on your own journey and I am very excited for all that is to come for you! Anyone facing medical challenges this could be…
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As a mother of a child with the diagnosis of trisomy 18 I am eager to share that their is life for those who are told their condition makes them incompatible of life and interventions for life denied to them. We are here to share our story, our journey and our joy, faith and love for our child.
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