))
Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders
«
S1 E1 Bonus: PANDAS/PANS Advocacy Day on Capitol Hill - Join us on April 12, 2024
Manage episode 411124117 series 3567249
コンテンツは Susan Newman Manfull, PhD and Susan Newman Manfull によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャスト コンテンツは、Susan Newman Manfull, PhD and Susan Newman Manfull またはそのポッドキャスト プラットフォーム パートナーによって直接アップロードされ、提供されます。誰かがあなたの著作物をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal。
In this bonus episode, I will be talking about our second annual PANS/PANDAS Advocacy Day on Capitol Hill, a joint event planned by the National Alliance of PANS/PANDAS Action (NAPPA) and The Alex Manfull Fund (TAMF) to be held on Friday, April 12th in Washington, DC. My guests -- Amanda Peel Crowley, co-founder of NAPPA, and Paul J. Murphy, Treasurer of The Alex Manfull Fund -- have all the details!
LINK to register: https://thealexmanfullfund.org/advocacy-day-on-capitol-hill-2024/
On Saturday, April 13th, our second annual 5K Run/Walk will take place.
LINK to register: https://thealexmanfullfund.org/the-alex-manfull-fund-2024-5k-run-walk/
BREAKING NEWS: April 8th marks more than (just) solar eclipse!
The Alex Manfull Fund Silent Auction will go live on Monday, April 8th at 12:00 p.m. and will end Sunday, April 14th at 9:00 p.m. with the culmination of the weekend events.
The ECLIPSE serves as a metaphor for the unique and marvelous nature of "36 Hours in DC," a time when patients, advocates, doctors, researchers, scientists, health providers, and legislators come together to advance change on PANDAS/PANS. Where the lives lost will move us all to a place where no life ever again be cut short -- or interrupted -- by infection-associated neuroimmune disorders.
Together, we can ECLIPSE PANDAS/PANS!
Here is the LINK to view the auction items: https://alexmanfullfund.betterworld.org/auctions/going-distance-capitol-hill-poto
Recorded March 29, 2024.
Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.
Credits: Music by Kingsley Durant from his "Convertible" album
To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org
Follow us on:
Facebook
Instagram
LinkedIn
12 つのエピソード
シェア
