Coping with Pediatric Chronic Illnesses

Inside Pediatrics

コンテンツは Children's Hospital of Alabama によって提供されます。エピソード、グラフィック、ポッドキャストの説明を含むすべてのポッドキャストコンテンツは、Children's Hospital of Alabama またはそのポッドキャストプラットフォームパートナーによって直接アップロードされ、提供されます。誰かがあなたの著作権で保護された作品をあなたの許可なく使用していると思われる場合は、ここで概説されているプロセスに従うことができますhttps://ja.player.fm/legal。

2+ y ago

MP3•エピソードのホーム

As one of only six centers of its kind in the United States funded by the Maternal Child Health Bureau, the Pediatric Pulmonary Center (PPC) at Children's of Alabama relies on family members as a critical part of the care team. In this episode of the Inside Pediatrics Podcast, we hear from Dr. Brad Troxler and family faculty member Linda Russo about a series of videos the PPC recently developed to help families through the daily challenges of a new diagnosis, raising a child with a chronic illness and how to advocate and become an agent for change.
Resources: Pediatric Pulmonary Center Video #1-Checking In https://youtu.be/yy5O6cowBvs
Pediatric Pulmonary Center Video#2-Settling In https://youtu.be/gs343LW5g5A
Pediatric Pulmonary Center Video#3-Breaking Out https://youtu.be/sAd-Es4xS3Q
CureSMA Spinal Muscular Atrophy - https://www.curesma.org/
MDA Muscular Dystrophy Association - https://www.mda.org/care/mda-resource-center
Cystic Fibrosis Foundation - https://www.cff.org/
Family Voices of Alabama - https://www.familyvoicesal.org/
Alabama’s Family-to-Family Health Information Center (F2F HIC) - https://familyvoicesal.org/programs-family2.php

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