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A podcast from the Association of University Centers on Disabilities (AUCD) that shares real stories from network members who are working to change systems and structures that impact people with disabilities. Each AUCD Network Narratives episode features a conversation about experiences at a LEND, UCEDD or IDDRC, especially highlighting emerging leaders and the voices of BIPOC disabled people and their families. We aim to energize AUCD network members to take action in their own communities. ...
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show series
 
Yetta Myrick is a mother of a teenage son on the autism spectrum. She is the founder and president of DC Autism Parents –a non-profit organization. In this episode, Jeiri is joined by Yetta to discuss her role as a mother and advocate, and how she promotes developmental monitoring to get her community the help, they need to access services for thei…
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Stephanie Meredith is a lend faculty and letter case medical outreach director. Her roles include creating and disseminating information about genetic conditions and building relationships between national leaders in the disability and medical communities. She is the author of the nationally recommended “Understanding a Down Syndrome Diagnosis”, an…
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Welcome to another episode of AUCD Network Narratives, the podcast that shares real stories from our members. Home and community-based services(HCBS) are critical for people with disabilities to live the life they choose for themselves. The HCBS Settings Rule ensures that the services people receive in their home are quality and that people with di…
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Linguistically responsive services are incredibly important in the development of children. However, cultural awareness is a crucial piece of providing the best and most supportive services for a diverse group of individuals. Dr. Debra Vigil is a professor of speech pathology at the University of Nevada, Reno. She is also a "Learn the Signs. Act Ea…
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Today, Jeiri is joined by her colleague and LEND director, Jen Smith. Dr. Smith is a clinical psychologist and board-certified behavior analyst, specializing in treating children and adolescents with intellectual and developmental disabilities, including autism spectrum disorder. Dr. Smith oversees the Lend program at Cincinnati Children’s Medical …
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Being an advocate in any field comes with a set of challenges. No one knows that better than Ida Winters. Ida Winters is a Black mother of three young men with special healthcare needs, one of whom has autism. She’s also a healthcare advocate who facilitates a support group for the autism society of Southern Wisconsin. Ida joins Jeiri for a convers…
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In today’s episode, Jeiri is joined by her colleauge, Sabrina Smith. Sabrina Smith is a senior health project coordinator for the Strong Center for Developmental Disabilities. Together, Jeiri and Sabrina co-lead a diversity, equity, and inclusion forum for the developmental-behavioral pediatrics division. During their conversation, Jeiri and Sabrin…
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In today’s episode, Jeiri is joined by Shayla Collins and Maureen Johnson. Shayla Collins is a staff member at AUCD and a wife and mother of two. Maureen Johnson is a program specialist at AUCD and provides technical support to university based interdisciplinary training and research programs. Furthermore, Maureen works on leadership and profession…
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In this episode, we’re joined by none other than Dr. Carol Salas. Dr. Carol Salas is the president of the board of AUCD Puerto Rico. She’s also a doctor in clinical psychology and a graduate of the National Disability Leadership Institute. Currently, she’s a faculty of the Graduate School of Public Health at the University of Puerto Rico. Today, sh…
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Micah Peace and Beth Grosso are co-researchers at the Center for Start Services at the University of New Hampshire. Micah is also an autistic multiply disabled advocate and community organizer from Louisville Kentucy, and Beth has a background in leadership, training development, qualitative research, and clinical supervision. In today’s episode, M…
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What do equity and employment mean in the realms of economic justice? This is the question that Jeiri seeks to answer in today’s episode. Guiding this conversation is Chisa O’Quinn from Wise, a supported employment training and technical assistance center in Washington state. With over 18 years of experience working with people from diverse communi…
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Welcome to season 2 of AUCD Network Narratives - a show that aims to cover a lot of national disability issues while handing the mic over to people to share their stories. Your host, Jeiri Flores, is here to kick off the second season by introducing herself, sharing what her vision for the show is, and sharing her passion for advocacy. In this shor…
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Join Jeiri, as she thanks you for tuning in to Season 1 of the AUCD Network Narratives podcast. Jeiri reflects on what the 1st season has had in stores and what's to come in season 2. AUCD Network has had the pleasure of hearing amazing stories from members and insights on ways we to work together to help advocate and educate the community at large…
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Representation is essential in advocacy work and the push for legislation. When it comes to autism and disability advocacy, listening, engaging, and understanding the experiences of people of color is crucial to changing the narrative. Elizabeth Morgan joins the show to help us understand the importance of connecting with stories of people of color…
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If you’re anything like Jeiri, you might not be familiar with the term “cultural broker”. That is why Jeiri is joined by Angela West. Angela is a multicultural specialist who serves families and professionals by educating them of the cultural impact on disability and connecting them to resources. Today, Angela is introducing you to what being a cul…
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George Gotto has experienced the network from many phases and positions. Today, he is the UCEDD Director of the University of Missouri Kansas City's Institute for Human Development in Kansas City, Missouri. He is trained as a medical anthropologist with an emphasis on community-based research and cross-cultural perspectives on health and discipline…
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When it comes to creating a self-advocacy curriculum, teamwork really does make the dream work. It takes a deep and patient understanding of the history and culture of the many walks of life. Jairo Arana joins the AUCD Network Narratives podcast today to share his advice on how we can improve self-advocacy curriculums within our programs. Jairo’s j…
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Did you know that there isn’t a word for “disability” across indigenous languages? Instead, there are different terminologies used amongst indigenous communities. If you’re wondering what inclusivity and advocacy for disabilities in Indigenous cultures look like, this episode is for you. Today, Jeiri sits down with Jim Warne, who is the Director of…
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When it comes to creating change within our network and communities, it is important to make sure that our resources are culturally and linguistically appropriate. Maribel Hernandez does just that in her important role at the Mind Institute. She was born in Mexico and moved to the United States 26 years ago. Today, she’s a proud mother of 2 sons ag…
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One of the most important tools to add to your toolbelt as an advocate or a researcher is the power of storytelling. Sharing stories of lived experiences is a powerful tool that can evoke empathy, compassion, and an understanding of different walks of life. Today, Jeiri is joined by Morénike Giwa Onaiwu, an educator, writer, public speaker, parent,…
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Being in charge of a huge network with a large reach is a daunting task. You have to be extremely mindful of the different cultural ties of each individual and their communities, and you need to make sure that you’re serving while being respectful of different cultural rules and traditions. Kiriko Takahashi is the Interim Director of the Center on …
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Big changes don’t happen overnight. Instead, it takes little day-to-day actions to bring forth change in massive ways. Dr. Gail Chodron is on a mission to bring forth change by improving access to integrated systems for children with an autism spectrum disorder. She is the training director for the Wisconsin LEND and the coordinator of community tr…
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Being truly inclusive of ALL, including people living at the intersections of marginalized racial, ethnic, and other social identities and cultural factors is important to the AUCD Network. But it’s one thing to talk the talk, and another thing entirely to walk it. Jeiri is joined by Jacy Farkas and Timotheus Gordon for a conversation all about fin…
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Stories are powerful. Especially the stories from leaders at the forefront of advocacy, impact, and change. This is why we invite you to tune in to our brand new show, AUCD Network Narratives. Hosted by Jeiri Flores, an advocacy specialist at the Strong Center for Developmental Disabilities and the co-chair for the Council on Leadership and Advocac…
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