PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
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Dr Sumer Sethi is a Unique blend of academic excellence and entrepreneurship, heading leading firms in India- Including DAMS (Delhi Academy of Medical Sciences) Premier test preparation institute in India for NEETPG prep
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Welcome to PEP Talks, the Patient Engagement Podcast brought to you by the Alberta Strategy for Patient-Oriented Research SUPPORT UNIT (AbSPORU) Patient Engagement Team. Join us for insightful conversations featuring a diverse array of voices, including patient, family, and community research partners, academic researchers, healthcare providers, policy-makers, and other key collaborators on the topic of partnerships in patient-oriented research and patient engagement in health research and h ...
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A political podcast run by two teenagers that discusses major political headlines and issues within the United States through reporting the facts, sharing opinions, guest appearances, relevant quotes from political figures, and more.
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Sometimes it gets crazy, other times pointless. But talking to a child is surprisingly therapeutic, sometimes even worth reflecting. :) Join me in my pep talks with Liam and together, let's embrace childhood once again. 🤗 @ipiing @liamarden
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A short weekly (sometimes daily!) podcast for struggling stepparents who need a quick pick-me-up. With love, from Blended Family Frappé. xo blendedfamilyfrappe.substack.com
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The show where we talk about your problems and ours while poking fun at daily life. Adrian, Sarah, and Mark talk about, insult, make fun of, praise, criticize, and explain life as we know it. It's like hanging out with your best friends- while having tequila. Not Amy Schumer, better.
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Motivational pep talks from liz. Take just 3 minutes and motivate yourself.
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Staying healthy is a task one needs to consciously undertake at all times because health is wealth. Just 27minutes of your time can stop you from having an unfulfilled destiny. Listen and be blessed.
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Host Ryan Millar takes input from an audience member and gives some heartfelt and hopefully helpful advice and a bit of a pep talk. From a rowboat on a lake to a busy Roman street, each episode takes place somewhere different.
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Zen Collectives' 'Soulful Pep Talks' is a conscious coming together of hearts & minds to inspire, uplift and keep it real. We are a health & wellness space on the Northern Beaches of Sydney where spiritual entrepreneurs gather to collaborate and co-create with one another and the community. These are unscripted and un-edited authentic conversations with soul's willing to share their journey + message with the greater world.
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Kasey Crawford Kellem is a school counselor, author, yoga instructor, motivational speaker, former business owner and special ed teacher, and now, podcaster. She is a beacon of resiliency as she continues through her journey dodging hurdles but still dancing all along the way! The creator and author of Mind Over Matter Books, Kellem’s first five books, “Believe,” “Love,” “Laugh,” “Relax,” and “Dream” teach children the resiliency tools necessary to overcome obstacles. After her husband died ...
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When compliance says `no´, Rina Newton asks `why not´: Breaking boundaries in Patient Engagement Practices
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28:43In this episode of Pep Talks, Emma interviews Rina Newton, a renowned expert in compliance, particularly within the pharmaceutical industry. Rina shares her journey into the field of compliance, emphasising the importance of understanding and navigating the complexities of self-regulation. The discussion delves into the challenges faced by pharma c…
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Life changing discussion on MCQ solving , useful for anyone appearing for a competitive exam by Dr Sumer & Dr Deepti, popularly called as mentor duo.
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Drug Development's Marathon Endurance Race: The CMO's Leadership in Patient-Centric Innovation
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22:48In this episode of PEP Talks, Emma interviews Dr. David Gillen, the Chief Medical Officer of Norgine, discussing the evolution and importance of patient engagement in the pharmaceutical industry. Reflecting on their first meeting 16 years ago, they explore how patient demands and advocacy have shaped industry practices. Dr. Gillen emphasises the cr…
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People With … Mark Bradley’s personal mission to revolutionise treatment using RWD
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28:21Emma hosts the third series of Pep Talks, sponsored by Norgine Pharmaceuticals, featuring Mark Bradley, a pioneer in patient engagement. Mark shares his journey from a student nurse in Northern Ireland to founding the People With platform. He discusses the importance of personalized medicine and the need for better understanding patient profiles to…
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Strengthening Health Systems Through Indigenous Research with Kienan Williams (EP 27)
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1:14:58Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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5-4-3-2-1: Overcoming inertia in patient engagement with Paul Simms
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24:40This PEP Talks episode features an engaging conversation between Emma and Paul Simms, founder and chief executive of Impatient. Sponsored by Norgine, the discussion delves into the challenges and frustrations of patient engagement in the pharmaceutical industry. Paul shares his journey and the motivation behind founding Impatient, emphasising the n…
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Persuasive Petersen: How to make a lasting impact for patients at every stage of product development
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20:15Emma hosts another edition of PEP Talks, featuring Dr. Gudula Peterson, the global patient engagement lead at Grunenthal. Gudula shares her extensive experience in the pharmaceutical industry, highlighting her journey from compliance to patient engagement. She discusses the evolution of patient involvement in clinical trials, emphasizing the import…
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On being a CPO: The ABC of building a patient engagement infrastructure
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17:44In this episode of the Pep Talks podcast, Emma talks to Liselotte Hyveled, the Chief Patient Officer at Novo Nordisk. Liselotte shares her unconventional journey from a pharmacist to her current role, emphasizing her focus on patient-centricity throughout her career. She discusses the importance of understanding patient experiences and integrating …
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Learning Health Systems with Dr. Charles Friedman (EP 1)
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32:21Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Measuring Patient Experience with Kyle Kemp (EP 4)
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20:03Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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For a PEP it is always personal: Bringing the passion and persistence in the patient voice into paediatric trial design
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21:31This Pep Talks episode features Begonya Nafria Escalera, head of patient engagement in research at St. John De De Children's Hospital, who champions the inclusion of children and young people in clinical research, a practice not yet widespread in Spain. Begonya discusses the challenges of communicating complex trial protocols to young patients and …
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Empathy with Evason: How an “accidental advocate” is re-writing the communications rules for patients
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20:40On PEP Talks, Emma interviews communications coach and advocate Monica Kleijn Evason. They recall meeting at a cancer conference where survivors' "FUCK cancer" shirts sparked a discussion on disruptive language in advocacy. Monica shares her advocacy journey, prompted by her son's brain tumor diagnosis and their struggles with the medical system. S…
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Strategy for Patient-Oriented Research with Nancy Mason-MacLellan (EP 5)
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30:30Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Creating Safe Spaces for Storytellers with PEP Talks (Engaging in Storytelling Part 3)
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36:51Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Organizations and Patient Stories from Matters of Engagement (Engaging in Storytelling Part 2)
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54:52Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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The Patient Story Experience: Cost or Benefit from SPORcast (Engaging in Storytelling Part 1)
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42:48Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Patient Engagment: Driven by empathy, fuelled by business. How ISPEP supports all patient professionals
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24:56Pep Talks, hosted by Emma Sutcliffe, is a podcast series sponsored by the International Society for Patient Engagement Professionals (ISPEP). In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPE, about her new role as Chief Patient Officer. Emma shares her journey from a medical biochemist to a patient engagement professional, emphasizi…
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Onions, pop culture & sea-gazing: How being an 'outsider' brings emotional resonance to the science of patient engagement
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20:38In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication. He shares insights on his role in bridging the gap between p…
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Patient Research Partners with Sandra Zelinsky (EP 2)
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35:54Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Careful and Kind Care For All with Dr. Victor Montori (EP 8)
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40:58Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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The Power of Storytelling Through Photovoice with Anna Anastasiou & Dr. Dave Campbell (EP 9)
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29:25Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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The Value of Experiential Knowledge in Patient-Oriented Research with Nicolas Fernandez (EP 10)
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38:54Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Partnering in Chronic Kidney Disease Research with Mary Beaucage (EP 11)
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31:29Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Sometimes events can bum us out, big things out of our control. In that case, let's focus on what we can manage. In this episode, which happens to take place on the sidelines of a community football match, Ryan lays out three things that you can focus on to help you power through.Ryan Millar による
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RePORT Patient Advisory Council: Part 2 with Kim Giroux, Anni Rychtera, and Nancy Verdin
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1:07:32Send us a text Episode Introduction In this episode, Part 2 of 2, we explore how deliberate and flexible strategies can create an ecology of inclusiveness, support, mutual respect, and co-building for meaningful patient engagement in health research. Patient Research Partners are integral members of the team, informing project design, participant r…
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Strive4Five with Steve: Core skill sets for honest and empathic patient advocacy
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21:31In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psyc…
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Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Enhancing Person-Centred Care with Dr. Kimberly Manilili (EP 12)
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32:49Send us a textAbSPORU Patient Engagement Team with Host Sandra Zelinsky による
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Re-Purposing the Ordering of Routine laboratory Tests (RePORT) Study: Part 1 with Anni Rychtera and Dr. Anshula Ambasta
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55:27Send us a text Episode Introduction In this episode, we talk about the Re-Purposing the Ordering of Routine laboratory Tests (RePORT) study, which is being conducted and implemented in Alberta and British Columbia. Hospitals frequently conduct routine blood tests, which not only cause patient discomfort but also significantly contribute to healthca…
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Fighting for patients in everyway: Stacy Hurt is out there, every day, making patient engagement matter.
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20:12Stacey Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talk podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacey brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical t…
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Mindset of No Regrets
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From scientist to strategist: Dr Victoria Harvey-Jones is on a mission to humanise healthcare
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14:03In this PEP Talk we hear from multi academic award winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications. Patient centricity to Integration: …
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💬 Send us a text! (Yes really!) There’s a great quote from Lucille Ball that goes “Love yourself first, and everything else falls into line.” That for sure has been my personal experience with stepparenting. (And really, with life in general.) As stepparents, we talk a LOT about loving our stepkids, about loving our partners and our blended familie…
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💬 Send us a text! (Yes really!) Society really doesn’t like stepparents, so coming into this role can feel intimidating. Or like we have something to prove, like we are NOT like those bad stepparents. We’re the GOOD stepparents. But do not let society or the ex or even your partner try to marginalize you or the stepparenting role. Our role as stepp…
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💬 Send us a text! (Yes really!) My stepkid had a real thing for ketchup when she was younger, borderline addiction. I’m talking, putting-ketchup-on-lasagna level of ketchup. She also had problems with acid stomach and wasn’t supposed to be eating too much tomato-based things. Dan sometimes remembered to limit her ketchup intake, but mostly not. The…
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💬 Send us a text! (Yes really!) Becoming a stepparent does not negate the needs and feelings we have as individuals. And yet, so many of our partners seem to think we shouldn’t have those needs or feelings… or at least that we should be perfectly content putting ourselves and our relationship needs dead last, apparently forever. This is not sustain…
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From Photographer to Professor: With a few detours along the way
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22:40Hear how Lara Bloom became the first Associate Professor of Patient Engagement Practice and built the Ehlers Danlos Society courtesy of a chance meeting in an art gallery. In this episode of "Pep Talk," Lara shares her journey from a career in photography to becoming a leading advocate for Ehlers-Danlos syndrome (EDS) and patient engagement. She di…
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Ryan talks the importance of finishing work, and to prove the point he shares a rap song he made a few years ago, that actually turned out to be pretty good. Finish your things. Not all of them, of course.Ryan Millar による
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💬 Send us a text! (Yes really!) Since most of us have never been stepparents before, learning to recognize what's typical for life in a stepfamily vs. what's a red flag is a bit of a learning curve. For example, it’s normal for your stepkids to act out because they're kids and life in two homes is tough and they don’t like a stepparent’s rules. It’…
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💬 Send us a text! (Yes really!) If you think your blended family will never feel like a "real" family, first of all you’re not alone. But secondly, don’t give up! It’s officially autumn here in the northern hemisphere right now, the air is getting colder and the world is getting quieter as the birds head south and critters start hibernating. Fall i…
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💬 Send us a text! (Yes really!) Parental alienation affects your stepkid’s ability to form loving bonds… including bonding with their stepparent. Alienated kids can develop a specific set of characteristics that also make them hard to warm up to... like acting cold, rejecting you & your partner, lying between houses, and many more than I could shar…
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💬 Send us a text! (Yes really!) Stepparents, if you're feeling stressed out and frazzled, please know that you're allowed to TAKE. A STEP. BACK. Burning yourself out only makes it that much harder to stay grounded and sane. Two things you kinda sorta really need if you wanna to keep your head above water while you're blending your family! We live i…
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💬 Send us a text! (Yes really!) For inexplicable reasons, many of the people around stepparents seem to think that we shouldn’t feel stressed or overwhelmed by this role just because we chose this — because we knew our partners had kids. When a person feels stressed about starting a new job, no one says "Well, you applied for this position. YOU kne…
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💬 Send us a text! (Yes really!) Again and again and again I'd try to win my stepkid over. I followed all the usual stepparenting advice: show an interest in their interests, take it slow, try not to take their rejection personally. And nada. Zilch. Nothing. I started getting desperate. I thought I could get her to like me if I acted differently. So…
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💬 Send us a text! (Yes really!) It shouldn’t be a newsflash to say kids of divorce still need parenting… AND YET, that is the topic of today’s pep talk. A child's parents not being together anymore does not negate the reality that kids need structure. They need a regular routine. They need guidance from the adults around them. All of this helps kid…
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💬 Send us a text! (Yes really!) It's human nature to want to defend yourself against false accusations, fight for equality and justice, and right the wrongs you see. It's also human nature to think to yourself "If I can just show them that I'm not the bad guy" and believe that'll somehow fix everything. But you don’t have to prove yourself to the e…
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💬 Send us a text! (Yes really!) Stepparenting in a nutshell reads like one long list of confusing contradictions. You’re supposed to be involved, but not so much so you’re overstepping. You need to give your stepkids space, but not so much that it seems like you don’t care. You need to be realistic about the role you’re taking on as a stepparent, y…
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💬 Send us a text! (Yes really!) Let me know if this cycle sounds familiar: The ex makes a unilateral co-parenting decision >> that decision interferes with your parenting time or otherwise conflicts with your morals, ethics, and values >> they know this and move ahead anyway >> you decide enough is enough and say you're not going along with it >> t…
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💬 Send us a text! (Yes really!) When we've become way too used to compromising our own values, beginning to say no sometimes can feel selfish. Boundaries and self-care can feel selfish. Prioritizing our mental health isn’t selfish, though; it’s us returning to ourselves after way too much time spent erasing our voice in an attempt to keep the peace…
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