Palliative Medicine 公開
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This episode features Baby Foo (School of Psychology, The University of Sydney, Sydney, NSW, Australia) and Dr Michele Wiese (School of Psychology, Western Sydney University, Penrith, NSW, Australia). With advancing age and the experience of life-limiting illness, people with intellectual disability need equitable access to effective palliative car…
 
This episode features Daisy McInnerney (Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK). Emotional disclosure -based interventions can improve psychological and physical wellbeing in general populations. A range of emotional disclosure-based interventions exist, but evidence of their efficacy in palliative …
 
This episode features Dr Liz Jamieson (Research Department of Practice and Policy, University College London School of Pharmacy, London, UK). Oral morphine is the recommended first line treatment for breakthrough pain. Intranasal diamorphine is an effective, rapid onset, well tolerated treatment for use in Accident and Emergency (ED) for trauma pat…
 
This episode features Laura Health (Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK). COVID-19 has a mortality of between 1% and 2% and is the deadliest pandemic in living memory. The elderly, and those with pre-existing conditions tend to be most vulnerable to severe disease and death. Common symptoms experien…
 
This episode features Benjamin Thomas (Palliative Care Service, Illawarra Shoalhaven Local Health District, Warrawong, NSW, Australia). Terminal delirium is a common symptom at the end of life, causing distress to patients and families. Traditional management for terminal delirium requires sedation, which limits interaction and rousability. This st…
 
This episode features Dr Lucy Selman (Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK). Twitter is a rich repository of data reflecting contemporaneous public opinion. The idea of dying alone is contrary to the concept of a ‘good death’ in many cultures, and not …
 
This episode features Dr Lucy Selman (Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK). During COVID-19, infection control measures have prevented many family members from being with seriously ill or dying loved ones, and impacted on after-death mourning practice…
 
This episode features Dr Stephanie Ament (Department of Health Services Research, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands). Identification of palliative care needs in patients with chronic heart failure may be more appropriate for the delivery of optimal care than the application of prognostic m…
 
This episode features Dr Geraldine Foley (Discipline of Occupational Therapy, School of Medicine, Trinity College Dublin, Trinity Centre for Health Sciences, Dublin, Ireland). Gerladine provides a summary of her letter, where she discusses how researchers have an opportunity to identify and learn from the benefits and/or challenges of conducting vi…
 
This episode features Professor María Arantzamendi (Institute for Culture and Society-ATLANTES, Universidad de Navarra, Pamplona, Spain). In the context of patients with incurable disease palliative sedation is used for refractory symptom control. A minority of articles measure the effect of palliative sedation and current assessment of parameters …
 
This episode features Jonathan Bayuo (Presbyterian University College, Abetifi, Eastern, Ghana and The Hong Kong Polytechnic University, Kowloon, Hong Kong). The immediacy of death in the burn unit is usually in the order of hours or days requiring the timely application of palliative care. Although the culture of burns/ critical care units is evol…
 
This episode features Dr Catriona Mayland (University of Sheffield, Sheffield, UK). Advanced head and neck cancer patients have specific challenges due to the impact of the illness on vital functions such as eating, speaking and breathing. Identifying the palliative care needs of this specific cancer subgroup would help provide guidance about how s…
 
This episode features Jeanna Qiu (Harvard Medical School, Boston, MA, USA). Maintaining quality of life for patients with malignant fungating wounds requires collaboration of diverse healthcare specialties, from oncology and palliative care to wound care. Research has explored the experiences of patients with malignant fungating wounds and the nurs…
 
This episode features Dr Bridget Candy (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK). A systematic review of effectiveness data on aromatherapy, massage and reflexology in palliative care drew inconclusive conclusions. A systematic review of qualitative evidences shows palliative ca…
 
This episode features Dr Katie Ekberg (School of Early Childhood and Inclusive Education, Queensland University of Technology, Australia) and Dr Anthony Herbert (School of Early Childhood and Inclusive Education, Queensland University of Technology, Australia). The urgency of caring for children with complex and serious conditions ensures that care…
 
This episode features Dr Yakubu Salifu (International Observatory on End of Life Care, Division of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, Lancashire, UK). Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, …
 
This episode features Dr Dominika Lisiecka (Department of Nursing and Healthcare Sciences, School of Health and Social Sciences, Institute of Technology Tralee, Tralee, Ireland). Amyotrophic lateral sclerosis causes multiple neurodegenerative symptoms including dysphagia, which impacts on person’s ability to eat and drink in a safe way and can cont…
 
This episode features Kerry Micklewright and Dr Morag Farquhar (School of Health Sciences, University of East Anglia, Norwich, UK). Informal carers play a vital role in supporting patients with chronic obstructive pulmonary disease (COPD). COPD carers may have unidentified support needs that could be a target for intervention by clinicians. The Car…
 
This episode features Minna Hökkä (Research Unit of Nursing Science and Health Management, Medical Department, Oulu University, Oulu, Finland). Palliative care is provided across a wide range of healthcare settings, from tertiary hospitals to primary care. It has been recognized that palliative care services should be delivered in at least two or t…
 
This episode features Rebecca Anderson (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK). Honest prognostic communication with families of patients in the final hours and days of life is important for enabling a good death and for families’ preparedness for that death. Prognostic uncert…
 
This episode features Dr Emily Harrop (Marie Curie Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK). The support needs of people experiencing bereavement vary significantly. Bereavement support in palliative care involves different types and levels of provision to accommodate these needs. Specialist grief therapy i…
 
This episode features Professor Catherine Walshe (International Observatory on End of Life Care, Lancaster University, UK). Publication bias is known, but usually associated with direction of research findings. Bibliographic analysis of databases shows publication rates differ between countries, and an increase in total number of publications over …
 
The palliative care needs of infants, children and young people differ to those of adults. The broad spectrum of paediatric life-limiting or life-threatening conditions mean that symptoms are varied and complex to manage. The UK National Institute for Health and Care Excellence (NICE) has emphasised pain management in paediatric palliative care as …
 
This episode features Emel Yorganci (Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, London, UK). Usual care provided to patients is rarely described in detail in randomised controlled trials (RCTs) of a complex intervention in palliative care. To interpret the effectiveness of interventions tested within RCTs, the care provi…
 
This episode features Kim de Nooijer and Sophie van Dongen (Erasmus University Medical Center, Rotterdam, Netherlands). Self-management has predominantly been studied in the context of chronic diseases, where it has been defined as ‘the ability to manage the symptoms, treatment, physical and psychosocial consequences, and lifestyle changes inherent…
 
This episode features Dr Catriona Mayland (University of Sheffield, UK). Few large studies describe initial disease trajectories and subsequent mortality in people with head and neck cancer. This is a necessary first step to identify the need for palliative care and associated services. This prospective cohort study recruited 5402 people with a new…
 
This episode features Dr Deokhee Yi (Cicely Saunders Institute of Palliative Care, King's College London). Large variation exists in the health service use near the end of life and a 10% of patients are especially high-cost users. A high proportion of care costs in the last year of life occur in the last 3 months. Patients nearing the end of life o…
 
This episode features Danni Collingridge Moore (International Observatory on End of Life Care, Lancaster University, Lancaster, UK). The provision and quality of palliative care delivered in long-term care facilities (LTCFs) varies and does not always meet the needs of the residents. Interventions to improve palliative care have been shown to lead …
 
This episode features Dr Bridget Candy and Dr Megan Armstrong (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK). Aromatherapy, massage and reflexology are widely used in palliative care. Patients themselves often report that these therapies are helpful. It is important to demonstrate va…
 
This episode features Dr Nicola White and Dr Linda Oostendorp (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London (UCL), London, UK). Recognising dying is a core clinical skill. There is inconsistent training in the United Kingdom and both medical students and doctors report feeling unsure and ill pre…
 
This episode features Brett Scholz (Medical School, The Australian National University, Acton, ACT, Australia). Consumer involvement is required by policy at all levels of health services. Some health disciplines have well-established research programmes focusing on consumer leadership. Palliative care is philosophically consumer-centred, but there…
 
This episode features Mary Scott (Ottowa Hospital Research Institute. Bruyere Research Institute). Many patients and families report improved satisfaction of care when palliative care when they are supported by palliative care specialist teams. Transitions of care from one setting to another are burdensome. Evidence suggests that palliative care ca…
 
This episode features Dr Amara Nwosu (Palliative Care Institute Liverpool and Marie Curie Hospice Liverpool, Liverpool, UK). Medical robots have mainly been used to support surgical procedures and for a variety of assistive uses in dementia and elderly care. There has been limited debate about the potential opportunities and risks of robotics in ot…
 
This episode features André Filipe Ribeiro (Universidade do Porto, Porto, Portugal). The number of patients with morbidities and other complex injuries due to burns has grown over the years. This kind of burn injuries can have a high impact in the physical and psychological health, cause social transformations and changes in role functioning. Palli…
 
This episode features Rebecca Anderson (Marie Curie Palliative Care Research Department, University College London, London, UK). Poor communication from healthcare professionals is a common complaint from relatives of patients at the end-of-life. Communication with relatives at this time is important for high quality end-of-life care and for relati…
 
This episode features Professor Miriam Johnson (Hull York Medical School, UK). People with heart failure have poor access to palliative care. People with advanced heart failure have poorer access to palliative care than people with cancer and the evidence base in support of heart failure palliative care is less developed. This systematic review dra…
 
This episode features Dr Bridget Candy and Dr Megan Armstrong (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK) Conventional therapies are not always sufficient to provide satisfactory relief of symptoms to those at an advanced stage of a disease. Evidence on the effectiveness of comple…
 
This episode features Deidre Morgan (Palliative and Supportive Services, College of Nursing and Health Sciences, Flinders University, Adelaide, SA, Australia). Functional decline can be anticipated for people with life-limiting illnesses. Trajectories of functional decline differ in shapes and patterns. Understanding patterns of functional decline …
 
This episode features Katrin Gerber ( National Ageing Research Institute & Queensland University of Technology). Research suggests that people generally would like to receive their end of life care at home. This study aimed to examine the decision making process of how preferences are formed. This qualitative study involved interviews of 9 terminal…
 
This episode features Sarah Combes (Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, UK). Older people living with frailty are projected to become one of the largest future users of palliative care. Advance care planning can improve person centred end of life care. However advance care planning is relativ…
 
This episode features Dr Bella Vivat (Marie Curie Palliative Care Research Department, UCL, London, UK) and Professor Paddy Stone (Marie Curie Palliative Care Research Department, UCL, London, UK). Sedative medication may be used to manage intractable symptoms at the end of patients’ lives. No UK guidelines specifically address the detail of how se…
 
This episode features Dr Catriona Mayland (University of Sheffield, UK). The Quality of Death Index showed variability in the international provision of care for the dying. In order to improve care, we need to have validated outcome measures to assess the current quality of care. One method of evaluation is to use the views from the bereaved relati…
 
This episode features Dr Ann Dadich (Western Sydney University, Austrailia) Specialist home-based palliative care can improve symptom management and quality of life and prevent hospitalisation at the end-of-life. There is significant variation in how home-based palliative care is delivered, even within similar jurisdictions. The clinical practices …
 
This episode features Dr Simon Etkind (Cicely Saunders Institute, King’s College London, London, UK). To be person-centred, care should take into account individual preferences. Some influences on care preferences in older people have been described. These include the family and care context, individual response and illness-related factors. Older p…
 
This episode features Dr Huw Williams ( Cardiff University, UK) Around 2% –3 % of consultations in primary care are prone to patient safety incidents. Patients receiving palliative care are not immune to patient safety concerns. ‘Out-of-hours’ services are responsible for providing care for two-thirds of the working week (18:30 to 08:00 on weekdays…
 
This episode features Dr Sophie Rees ( University of Warwick, Coventry, UK ) and Dr Ann Hutchinson ( University of Hull, Hull, UK ) Cancer patients are at an increased risk of thrombosis. Current guidance for treatment is injected anticoagulants although there is some doubt as to the long-term acceptability of injections to patients. Many cancer pa…
 
This episode features Dr Alex Chan (Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA). Routine assessment of many established quality indicators is nearly impossible because the information is embedded as unstructured free text within electronic clinical notes. A key example of this is timely documen…
 
This episode features Dr Hazel Coop and Dr Clare Marlow (WM CARES (West Midlands Collaborative Actioning Research in End of life and Supportive care), New Cross Hospital, Wolverhampton, UK). This regional survey aimed to determine whether palliative care professionals in the West Midlands (United Kingdom) have discussions about digital legacy with …
 
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