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Twice a month, delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. Episodes are released on the first and third Thursday of every month. For more information and additional support visit: https://www.macularsociety.org/
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Bitesize Benefits: What is Attendance Allowance and how do I apply?
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Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease. This episode is part one of two, focused on Attendance Allowance. In this episode we d…
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For most, taking public transport is done without much thought or stress. But, sight loss can have a huge impact on the relative ease with which most people travel. For this My Macular and Me podcast we are joined by Pete Lock, national habilitation lead at Guide Dogs, who shares his own experiences of travelling across the UK on public transport. …
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Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease. Join us as we look at the recent Spring Budget announcement and explore what these…
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Understanding gene mutations in childhood eye disease
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Researcher Roly Megaw, a clinical lecturer and honorary consultant ophthalmologist from the University of Edinburgh and West Lothian joins us for this episode of the podcast. Roly will be shedding light on the devastating impact of RPGR gene mutations, which can cause macular and cone rod dystrophies. Join us as he unveils discoveries from his join…
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Bitesize Benefits: PIP assessment and decision
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Join us for our final episode on Personal Independence Payment (PIP) in our Bitesize Benefits series. In this episode we explore the final stages of the application ,unravelling the assessment process and possible outcomes. This episode is the final in three, focused on Personal Independence Payment (PIP). For more information on benefits available…
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Bitesize Benefits: The ins and outs of a PIP application
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Join us for the second episode in our Bitesize Benefits series as we continue our exploration of Personal Independence Payment (PIP). We take a look at the application process and uncover valuable tips to help you with your claim. This episode is the second of three, focused on Personal Independence Payment (PIP). Join us as we explore what PIP act…
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Bitesize Benefits: What is PIP and how do I apply?
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Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial support for those living with macular disease. This episode is the first of three, focused on Personal Independence Payment (PIP)…
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What causes photopsia and photophobia in patients with Stargardt?
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Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist and professor of retinal neuroscience …
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When and why are lasers used to treat patients with retinal conditions?
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Dr Liam Sullivan, consultant ophthalmologist at Cambridge University Hospital, joins My Macular and Me to discuss lasers as treatment for patients with retinal conditions, such as diabetic retinopathy and retinal vein occlusion. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and suppo…
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Latest advances in genomics for inherited retinal disease
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Gavin Arno, senior scientist and researcher from the department of genetics at Moorfields Eye hospital joins us for this episode of the My Macular and Me podcast. Gavin joins us to discuss the latest advances in genomics for inherited retinal disease. Our understanding of genetics and how DNA works has grown considerably in the last decade. This un…
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How can job seekers with macular disease overcome barriers to employment?
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For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experience with employment. They discuss the barriers that employers encounter when thinking about hiring someone …
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The emotional support available for those living with macular disease
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Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when she felt she was at her lowest. This episode looks at the emotional impact of a diagnosis of macular dise…
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For this episode of the My Macular and Me podcast we are joined an Eye Care Liaison Officer (ECLO). and a rehabilitation officer as they discuss their roles in supporting people with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their …
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New laser treatment for diabetic macular oedema (DMO)
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For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has been available for many y…
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Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about Sorsby Fundus Dystrophy. For further information on Sorsby Fundus Dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/ The Macular Society has be…
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BrightPage: a tool to help you read with macular disease
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Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way for reading. This wou…
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An insight into the Macular Society research team
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Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular and Me podcast to give an overview of the team and bring an update on the latest developments in macular research. The Macular Society has been supporting people with macular conditions for over 30 years. The right informa…
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How effective are techniques to manage visual hallucinations?
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Professor Robin Walker joins us for this episode of the My Macular and Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss. Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support group via our counsellin…
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Inherited Macular Disease - Should I know my gene?
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Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular and Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling. The Macular Society has been supporting people with macular conditions for over 30 years. Th…
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Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successful, could pave the way …
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What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD). The Macular Society has been suppo…
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In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC. The Macular Society has been supporting people with macular conditions for over 30 years. The right informat…
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Diabetes can have a huge impact on our sight. In this episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease. The Macular Society has been supporting people with macular condi…
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In this episode of the My Macular and Me podcast we are joined by Zsuzsi Szabo of Support 4 Sight and Nick Thomas from North Wales Society for the Blind, who share their employment advice for people diagnosed with a sight condition. Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sigh…
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In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children. The Macular Society has been supporting people with macular conditions for over 30 years. The ri…
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Latest Developments into Stargardt Disease Research
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In this episode of the My Macular and Me podcast we are joined by Professor Andrew Lotery of the University of Southampton. He speaks to the Macular Society about the latest news regarding research into Stargardt disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can …
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Cost of living - Support for people living with sight loss
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Our first episode welcomes our Working Age and Young People's Service Manger, Colin Daniels. The focus of this episode is benefit entitlements, cost of living contingencies and grants for equipment. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome th…
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