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Aunty M Brain Tumours Talk Show - A podcast sharing inspiring stories of brain tumour survivors. Join our supportive community for heartfelt interviews, insights from medical experts, and empowering tales of resilience. Tune in, be inspired, and spread awareness on the path of brain tumour recovery.
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Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Hosted by Hugh Hill, Services Support Specialist at Brain Tumour Foundation of Canada, learn more about the organization’s resources, programs, and services for people affected by a brain tumour.
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Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease. Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yo ...
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CChapter 51 - salivary gland tumours Cover art photo provided by Erol Ahmed on Unsplash: https://unsplash.com/@erol
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In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM). Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he deta…
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Episode 55 - Spotlight on Research into Glioblastomas
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In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more …
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Peter, a resident of the greater Toronto area, is a 49-year-old survivor of a brain tumour. His journey began in January 2019 when he was diagnosed with a grade 2 astrocytoma following a seizure. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…
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Welcome to Day 29 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. Today, Pamela shares her poignant journey from diagnosis to recovery and beyond. Pamela introduces us to Brain Tumour Ireland, the sole charity in Ireland dedicated to supporting individuals and families affected by brain tumours. Unfunded by the government, this …
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Welcome to Day 28 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. In today’s heartfelt episode, we are joined by Laura. Laura shares her intense and emotional journey with a brain tumour, from the first symptoms during pregnancy to her current battles with the disease. Her story is a tale of personal struggle, a beacon of hope, …
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My Granddaughter's Optic Pathway Glioma Story
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Hayley Conroy shares her granddaughter Lily's compelling story in this episode of Aunty M Brain Tumour's Talk Show. Lily's early life hinted at no challenges until her family started noticing unsettling signs a few weeks post-birth. Despite being a happy and active baby, Lily struggled with feeding issues and an unexplainable high-pitched scream, l…
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In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound …
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In this podcast episode of Aunty M Brain Tumours Talk Show, we speak to Matthew. Matthew recalls an ordinary Thursday in October 2023, playing football and feeling fit, only to experience what he describes as being struck by lightning 60 minutes into the game. This moment marked the beginning of a completely heart-wrenching journey for him, leading…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Mel Kelly shares her journey from the initial misdiagnoses of persistent headaches and vision loss to her brain tumour diagnosis on December 19, 2022. Despite the shock and challenges, including a crucial surgery just before Christmas and the struggle to regain her driving license, Mel's s…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support. Follow Aunty M Brain Tumours on: X Facebook Instagram YouTube…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Stefania shares her meningioma story from the first symptoms to the diagnosis, treatment, and ongoing challenges she faces. She highlights the crucial role of support systems like the charity Brain Tumor Support. Join the urgent SOS Appeal. Follow Aunty M Brain Tumours on: X …
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In this podcast episode of Aunty M Brain Tumours Talk Show, Yaron shares his extraordinary journey of facing a Glioblastoma Multiforme diagnosis at 29. Yaron's story is not just about survival; it's a testament to the power of medical intervention. Yaron recounts the subtle symptoms that initially appeared in 2003, including frequent headaches and …
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Épisode 7 - Entrevue avec Kathy (en français)
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Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale. Suivez-nous sur Facebook et sur Instagram. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questio…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Paris Dancy shares his battle with a pituitary tumour. Starting in 2013, Paris began experiencing symptoms like weight gain and severe headaches, which he initially attributed to stress from his demanding job as an investigator. He was finally diagnosed with a pituitary tumour. The diagnos…
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John's Glioblastoma Story (Told by his Family)
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In this podcast episode of Aunty M Brain Tumours Talk Show, Charlotte and her mother, Alison, share their deeply personal journey following the loss of John, Charlotte's father and Alison's husband, to a brain tumour. Their story is a tribute to John and an enlightening discussion on the importance of brain tumour awareness. Find John's Crew On Fac…
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In this podcast, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects. Susan shares her recovery story and involvement in The Beyond Recovery Project, a non-profit community supporting brain tumour…
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In today's Aunty M Brain Tumours Talk Show episode, we speak to Brain and his wife, Emma. Brian was diagnosed with Oligodendroglioma in 2017; they talk about the process of surgery, radiotherapy, and chemotherapy and the ensuing challenges, such as memory issues, fatigue, and migraines. They emphasize the couple's engagement with Brain Tumour Resea…
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In this Aunty M Brain Tumour’s Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive o…
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In this inspiring episode of the Aunty M Brain Tumours Talk Show, Grace shares her incredible journey of overcoming a Pilocytic Astrocytoma, shedding light on the importance of Brain Tumour Awareness Month. From unusual symptoms to diagnosis, treatment, and life after recovery, Grace's story is a testament to resilience, self-advocacy's importance,…
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Henna shares her brain tumour story in this impactful episode of the Aunty M Brain Tumours Talk Show. She bravely shares her journey with a brain tumour. As part of Brain Tumour Awareness Month, Henna's story underscores the importance of symptom awareness, the complexities of diagnosis, and the challenges of navigating the healthcare system, espec…
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Today, we have the incredible Natalie Welch sharing her brain tumour story. Natalie was diagnosed with an acoustic neuroma in 2009. She shares her diagnosis, treatment, and recovery journey. Find Aunty M Brain Tumours online: Website Facebook X Instagram…
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In this episode, we listen to Rebecca's amazing journey through health challenges like Lyme disease, chronic fatigue, brain tumours, and recovering from a stroke. Her story starts with an illness in 2013 that led to misdiagnosis and a critical seizure that revealed a brain tumour. Despite severe setbacks, including speech and motor skill difficulti…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Simona Stankovska about her fight against Cavanoma—a brain lesion—misdiagnosed due to seemingly ordinary symptoms. Her journey from misdiagnosis to undergoing critical brain surgery highlights the healthcare challenges and personal upheaval a Cavanoma diagnosis brings, including paralysis…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Molly; she shares her diagnosis, treatment and recovery. Molly was diagnosed with an astrocytoma; her story unfolds from a serendipitous trip to Thorpe Park, where the G-force from roller coasters inadvertently led to the discovery of her tumour to the challenging path of diagnosis, surge…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Ashleigh, about coping with her father's long battle with cancer, which ultimately led to a devastating diagnosis of brain cancer. Ashleigh shares the emotional rollercoaster of her father's initial diagnosis of thyroid cancer, the subsequent spread to his lungs, and the final discovery o…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Lucy, who shares her brain tumour diagnosis, treatment, and recovery. Lucy recounts the moment of having a seizure at home, leading to the discovery of a mass in her brain, and walks us through the subsequent steps of her medical journey, including surgery, radiation, and chemotherapy. De…
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Stephanie's Mother was Diagnosed With A Brain Tumour
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In this episode of the Aunty M Brain Tumours Talk Show, we speak to, Stephanie, who shares the impact of brain tumours by sharing Stephanie's experience with her mother's diagnosis and treatment. The story begins with Stephanie's early realization of her mother's illness, leading to a diagnosis of a brain tumour. This episode explores the emotional…
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Alex is a brain tumour survivor. He moved to Canada from Australia 15 years ago and worked in the mining industry for many years. He was diagnosed with a grade 3 oligodendroglioma five years ago. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…
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Kiera's Medulloblastoma and Posterior Fossa Syndrome Story
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In this episode, we hear the inspiring story of Kiera Mitchell, who was diagnosed with Medulloblastoma at 19. Kiera recounts her initial symptoms, the shock of her diagnosis, and the gruelling journey through treatment, including a 15-hour craniotomy and challenging chemotherapy. Despite facing physical and emotional hurdles, including partial para…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Jamie, an Astrocytoma warrior. This episode highlights the challenges faced by those living with Astrocytoma and sheds light on the advancements in medical treatments and the importance of community support.Key Takeaways:- The importance of awareness and research funding for brain tumours…
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In this episode of the Aunty M Brain Tumours Talk Show, we're diving deep into the heart of Brain Tumour Awareness Month. Our mission? To shine a spotlight on a critical issue that often flies under the radar, despite its significant impact. In today’s episode, we're speaking to Holly; she shares her symptoms, treatments and recovery. Holly was dia…
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In this episode of Aunty M Brain Tumour's Talk Show, we welcome David, who will discuss his brain tumour symptoms, diagnosis, treatment, and recovery. David's story is one of determination and medical breakthroughs. Follow Aunty M Brain Tumours on: X Facebook Instagram …
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In this episode on the Aunty M Brain Tumours Talk Show, we speak to Kate Beddow. She opens up about her life-changing journey with a Pituitary Tumour and Acromegaly. From the confusion of initial symptoms to the shock of diagnosis and the miraculous joy of motherhood against all odds, Kate's story is a positive story that will give others hope. Fol…
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In this episode of Aunty M Brain Tumour's Talk Show, we have guest Maxine. We talk about her doctors mistaking her initial symptoms for perimenopause to undergoing a full craniotomy to remove a brain tumour. Maxine's story highlights the challenges of diagnosis, the emotional and physical toll of treatment, and the importance of support from health…
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Melinda's life took an unexpected turn when she was diagnosed with a meningioma in her brain's Posterior Fossa, a type of brain tumour. Initially misdiagnosed as migraines, she faced walking difficulties, violent headaches, and blurred vision. Rushed to the hospital, she underwent emergency surgery to address swelling caused by the tumour. Further …
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In this episode of the Aunty M Brain Tumours Talk Show, Zach Round shares his brain tumour diagnosis. Discovered after a mountain biking accident, Zach talks about his surgeries, complications, and meningitis. Facial reconstruction surgeries and challenges unfold, accompanied by the unwavering support of his family. Zach's passion for mountain biki…
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In this episode of the Aunty M Brain Tumours Talk Show, we hear from Garrett Miller, who shares his moving story of being diagnosed with a brain tumour as a child. He recounts his early symptoms, like seizures that were initially dismissed as fainting spells, leading to the shocking discovery of a brain tumour after a grand mal seizure. Garrett des…
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Sarah is a brain tumour survivor. She was diagnosed with a brain tumour 13 years ago, when she was 25 years old. She works as a registered nurse at The Hospital for Sick Children. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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Episode 54 - Living with a rare brain tumour and Everest in the Alps
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In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally. In February 2024 Martin, along with 3 of his friends are taking on the Everest in the Alps chal…
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In this episode of the Aunty M Brain Tumours Talk Show, we hear from Andy Tudor, who shares his personal battle with a brain tumour. Initially dismissing his symptoms as age-related, Andy's life took a dramatic turn when he was diagnosed with a meningioma. He recounts the challenging period leading to his diagnosis, the impact of waiting for surger…
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Episode 53 -Using exercise as a form of therapy
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In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health a…
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In this episode of Aunty M Brain Tumour's Talk Show, in this deeply personal and inspiring episode, Marcus Elwell, father of three, shares his journey through a tumultuous period in 2019, marked by forgetfulness, stress, and the challenges of running a retail business amid the Brexit scenario. The episode delves into his struggles with health, the …
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Carolyn grew up in a First Nation community in Southeastern New Brunswick. She shares her mother Phyllis' story, a polio survivor who passed away from a brain tumour. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…
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Finding Strength in Shared Brain Tumours: Michelle and Karina
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In this episode of Aunty M Brain Tumour's Talk Show, we have two guests, Michelle and Karina, who both have optic nerve gliomas, a type of brain tumour. They share their experiences of being diagnosed and their treatment journeys. They emphasize the importance of finding support and not feeling alone in their journey. They also discuss their Instag…
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In this episode of Aunty M Brain Tumour's Talk Show, Israr Jan-Parker shares her journey of being diagnosed with a Clevel Meningioma, a rare brain tumour. Initially, her diagnosis was unexpected as she had sought medical attention for chronic back pain. The tumour was affecting critical structures in her brain, causing various health issues. Israr'…
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Coping with Brain Tumours: A Conversation with Sam
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The "Aunty M Brain Tumours Talk Show" is an informative and inspiring podcast featuring discussions about brain tumours and the experiences of those affected by them. In this episode, Sam shares her journey with brain tumours, beginning with her diagnosis in June 2013. She initially experienced symptoms like pulsatile unilateral tinnitus, balance p…
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In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…
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Revolutionizing Cancer Treatment: The ChemoSeed Implant
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In this Aunty M Brain Tumour’s Talk Show episode, we speak with Dr Christopher McConville, an expert in drug delivery for cancer treatment, who is dedicated to addressing the challenges in brain tumour and pancreatic cancer therapy. These cancers have seen little improvement in survival rates due to drug delivery issues. McConville's team has devel…
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The Power of Petitions in Brain Tumor Research
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In this Aunty M Brain Tumours Talk Show episode, we speak to Hugh Adams from the charity Brain Tumour Research. He talks about their goal to reach 100,000 signatures by Wednesday. They already have well over 70,000 signatures but need one last push with your help. Sign and share the petition HERE Hugh talks about the power of Petitions and why the …
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Episode 51 - Spotlight on the Ways Ahead Research Project
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In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…
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